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Old 10-19-2012, 11:18 AM   #36
Nancy L
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Join Date: Apr 2009
Location: La Quinta, Ca
Posts: 253
Re: Update on Barb

You are a wise man. My current reoccurrence was finally detected on Pet when I started to have tingling in my fingers which proceeded with severe pain up my right arm and then my rt shoulder and back. I lived in bed.On an ice pack and pain meds for weeks before the scan revealed a 3 cm tumor in my rt supraclavical which was pressing on the branchial plexus. I couldn't eat and lost a lot of weight. i got a new appreciation for the pain so
many patients try to live with. I begged for radiation to start ASAP. I had 19 rads. The pain discomfort I have now is only in my rt hand. They tell me it will take a long time for these small nerves to regenerate and they may never regenerate. After radiation they made me wait at least 6 wks for chemo which was fine because I was busy trying to get T-DM1. Barb has to get the pain under control to fight onward with chemo.
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