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Old 09-21-2012, 10:14 AM   #1
Paula O
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Re: Perjeta - leap of faith

>Im hungry. I need a full time personal aide to bring me stuff! Seriously, feeling pretty good and it's good I am hungry because I am under several ultimatums to get my weight up (new for me!) and eat LOTS of protein to help the healing process. But it's suh a pain ( literally) to haul my (tiny) butt to the kitchen and get breakfast!

Hey, that's wonderful, Chrisy! I count that as an answer to specific prayer that you would get your appetite back and able to avoid the appetite stimulants.

Paula
P.S. A handy dandy trick is for your husband, before he's off to work, to leave a cooler with cold food items and thermos with warm ones next to where you are camped out and you can "graze" all day as you are able.
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Old 09-21-2012, 01:10 PM   #2
StephN
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Re: Perjeta - leap of faith

You sound MUCH more chipper today! So glad.

All the good wishes to "kick butt" on the cancer and leg wound may have gone a little too far if you are now needing to GAIN some weight!!! Guess we will have to use some different terminology in our wishes for continued good progress on both fronts (and not backs, etc).

Sounds like any side effects from the Perjeta are quite mild, which is a blessed change from some of the other
treatments in the recent past.

Yes, protein is necessary - my onc told me to eat an egg once a day while on chemo, especially in the morning after a long period at night of not eating. Kick start my day he said. I am sure you have some shake recipes too.

Keep the good news coming.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 09-21-2012, 07:30 PM   #3
alicem
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Re: Perjeta - leap of faith

So GLAD to hear you are starting on perjeta. Hope your leg wound heals QUICKLY!!

Sending love!!

~Alice
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9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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Old 09-22-2012, 05:13 AM   #4
Becky
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Re: Perjeta - leap of faith

Another option is to make smoothies and use some of the body builders whey protein in them. Although I never used it, it is in my house because my husband does (it helps with his hypoglycemia). He only uses one scoop a day because you need to work up to 2 scoops. None the less, he puts it in milk and says its delicious. He uses "Body Fortress" brand in vanilla flavor. Blend some up with greek yogurt (has more protein than the regular kind) and frozen berries (any kind) and/or bananas. This can be a snack or part of breakfast.

Thinking about you all the time.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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