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Old 09-04-2012, 09:34 PM   #1
Nancy L
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Location: La Quinta, Ca
Posts: 253
Re: TMD1 is coming!

Phil,

I asked the trial coordinator and onc if they would help me make a case for expanded access. They said once the rules are announced, they will let me know if they think I could qualify but they didn't sound encouraging. I'll keep you all posted if I learn anything useful about how expanded access will work this time around.
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Old 09-04-2012, 09:43 PM   #2
KsGal
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Re: TMD1 is coming!

Im so sorry Nancy. ((hugs)) I know we are all excited about the possibility of TDM1 being approved on a fast track. I still worry. I was excited about Pertuzimab as well, and then when it was approved, its not for people who are stage IV like me. Im really happy for those who are able to receive it, but Im a bit selfish and I would like to share in all these cutting edge drugs for myself as well. Here's to hoping we will all be TDM1 eligible when it is approved.
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Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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