Denied compassionate use of TDM1

[Nancy L]

Thank you for this helpful information. By chance is your SF onc Hope Rugo? She helped me get herceptin because she said to me "you have a lot of disease". Is there anyone on this site who has connections to validate 9/15? I have been working on getting approved for the Th3resa trial and learned from the coordinator that soon they will stop randimizing--everyone approved will get Tdm1. But that is a little different from every onc being able to prescribe for those who have failed other stage iv cocktails. It would make my day if I could get it close to home. I think I read that someone knows the patient advocate at Genentech. Maybe she would confirm. There was so much hype when Perjeta was approved only to be told I couln't get it because I was treated for stage iv with tykerb/herceptin.