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Old 08-07-2012, 11:22 AM   #1
LuckyLinda
Senior Member
 
Join Date: May 2012
Location: Virginia Beach, VA.
Posts: 38
Re: headaches

Penny,
Will add you to my prayer list.

Linda
__________________
Found lump by self-exam 10/14/11
HER2neu +/Estrogen +/progesterone -
Grade III poorly differentiated
R side modified radical mastectomy on 12/09/11 with immediate reconstruction (expander)
Stage IIB 2 nodes + out of 10 removed
Double power port inserted 1/11/12
Chemo therapy (TCH) - every 21 days for 6 cycles beginning 1/25/12
Finished chemo on 5/21/12
Continue Herceptin only every 3 weeks until 12/28/12 Radiation (28 rads) began 6/26/2012.
Will start Femara after radiation ends (8/03/12)


From: It's Not About the Hair:
"The hope for healing is not born out of a fear of death, but a love of life.This is a very good thing. When people love life more than they fear death, they come to treatment with open hands, open hearts, open eyes.When people fear death more than they love life, they are clinging and clutching and grasping."
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Old 08-07-2012, 11:34 AM   #2
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: headaches

Dear Penny -

When is the MRI? Then we can really target the prayers.

If you can, try to log the specifics of your headaches. Are you taking anything and does that help? For how long?

Have you noticed any other changs such as in balance, digestion, vision or anything else?

The ENT may want to CT your sinus area or take a culture. Is it clear when you blow your nose?

Good luck with all the testing. I have had all that and more. If it is a sinus problem there are lots of ways to treat those.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 08-07-2012, 12:21 PM   #3
Rolepaul
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Join Date: Jan 2012
Location: Boulder Colorado as of January 2013
Posts: 391
Re: headaches

May you not join the Brain Mets club, but if you do, please email me. It is not as bad as it was five years ago and your doctor may not know that.

I will tell you that Sunday night everyone on both planes had sinus issues. Here's to antibiotics and sinus meds making the problem go away.
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