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Re: Any other Power Port patients here?
My double power port (Bard) sticks up like a bathtub drain in the "up" position. I was told that is because I don't have a lot of subcutaneous fat. It is always sore for several days after infusions, and the needle stick just plain hurts. I have a pretty good pain threshold having had 3 shoulder surgeries, two ankle surgeries, and knee surgery, but this thing is very snesitive to the touch! .The only time it has been accessed is when I have my infusions. For blood draws and MUGA scans they use my arm and it is totally painless. I'm not gonna fight them on this one. I can't wait to have it GONE! My seat belt rubs against it, it shows through my clothes and it is still black and blue after 5 months. I read somewhere that someone had her oncologist schedule the removal on the same day as the last Herceptin infusion. I'm going to ask for the same thing!
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 Found lump by self-exam 10/14/11
HER2neu +/Estrogen +/progesterone -
Grade III poorly differentiated
R side modified radical mastectomy on 12/09/11 with immediate reconstruction (expander)
Stage IIB 2 nodes + out of 10 removed
Double power port inserted 1/11/12
Chemo therapy (TCH) - every 21 days for 6 cycles beginning 1/25/12
Finished chemo on 5/21/12
Continue Herceptin only every 3 weeks until 12/28/12 Radiation (28 rads) began 6/26/2012.
Will start Femara after radiation ends (8/03/12)
From: It's Not About the Hair:
"The hope for healing is not born out of a fear of death, but a love of life.This is a very good thing. When people love life more than they fear death, they come to treatment with open hands, open hearts, open eyes.When people fear death more than they love life, they are clinging and clutching and grasping."
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