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Old 04-27-2012, 10:42 PM   #1
allielala
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Join Date: Mar 2012
Posts: 3
Re: Is it possible to be cured?

Hi l am her+. Diagnosed injuly 2009. Diagnosed with liver mets in march 2012. In Feb my oncologist said l was doing well and see you in a year despite me mentioning l had seen my gp regularly complaining of right side muscle pain and had ultrasounds etc. The tests had revealed two spots. But were dismissed and not passed on to my oncologist. I of course questioned this. Is it cancer Doctor? My Gp assured me it would be highly unlikely and to stay intune with my body. In march after further tests it revealed it was 6cm's. Shock. Having adromycin weekly now until mid july. I had 3girls under 3 last time. My youngst was 4months. Now atleast they are more independant. My liver condition is improving and my appetite. My head oncologist remains optermistic but another told me 18mths - 3yrs if lucky. l have organised second opinons etc which should take place very soon. My girls were distressed about my hair falling out but now are doing fine.
Plodding on just wanting to be a ma at 37yrs. xo
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Old 04-29-2012, 06:04 AM   #2
Cathya
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Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
Re: Is it possible to be cured?

Allielala;

I am so sorry and surprised to hear this. I was seen every 3 months by my oncologist for 6 years and only in the later years every 6 months. He was very aggressive in my treatment and in testing any symptoms I had during this period but luckily for me no mets as far. I am so sad that you are going through this at such a young age with such little children to care for and worry for as well. Do search this site for others with similar pathology (ie. er/pr status, etc.) to see what treatments they are following. It was only after I came to this site and met these strong women that I learned to be my own advocate and I hope you have the same results. My best wishes for your long term health.

Also, thank you Lani for posting your information. I agree wholeheartedly with you that I want the proof.....doubt I'll get it but it sure would be great. I also agree that the word "cure" makes me uncomfortable. I just think NED but would love to think it's forever too.

Cathy
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Cathy

Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18


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