IBC after initial dx of IDC?

[Debbie L.]

Yanyan,

I hear your fear and sense of urgency and send many good thoughts and prayers, of course wishing you were not having to do this.

I don't know the answer to your questions about IBC vs. skin mets. I do know Ginny Mason, executive director of http://www.ibcresearch.org/ , and they would be an excellent resource to help answer those questions.

Would you consider taking time for a second opinion from an NCI-designated Comprehensive Cancer Center? (or maybe you're already getting care at one?) It might not change the plan but will give peace-of-mind both now and later. http://cancercenters.cancer.gov/canc...ers-list2.html . Often consultations can be done virtually, although in your case I'd imagine they'd want to look at your slides for a second opinion on those, perhaps first of all.

Please keep us posted, we're all holding you in our hearts and sending good thoughts.

Debbie Laxague