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Re: New role call for stage IVers
Dx stage 4 IBC, mets to liver one year ago. Did 6 rounds of taxotere, carboplatin and Herceptin before surgery. At end of chemo PET scan showed all live cells gone except for orig tumor which had shrunk 90%. Bilteral rad/mod mast in Aug.
Path report: no remaining live cells and all lymph nodes were clean--clear evidence they had been malignant but were no more. no more chemo or any rads since I was in clinical remission, continuing Herceptin.
Thought I had my life back. Jan 2012 scan showed mets returned to liver more than before. Currently taking Tykerb in addition to Herc. Next scan in May and will go back on chemo if mets are still there. I was already scared and deeply depressed and then I was dx with mascular degeneration in 1 eye last week.
Friends and family do not realize the gravity of having mets return in less than 6 mons. Trying to find a way out of this dark place I'm at.
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