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Old 02-17-2012, 12:21 PM   #1
CarolineC
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Re: Herceptin & Urinary Tract Issues?

Hi Terri,

I was also diagnosed with I.C. almost 4 years ago and was on Elmiron for 6 months. I did not have any issues while on Herceptin but I think that was because I had made alot of dietary changes, specifically eliminating coffee, tea and citrus juices because they were thought to irritate the bladder lining. If you weren't given a list of things to avoid you could google interstitial cystitis and there is alot of information about it.

Another juice I eliminated was cranberry juice because although it can help people with UTIs, it is not good for people with I.C.

Hope this helps.

Caroline
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Dx Age 47 July/09 Stage 2B/3
Left Mast. Aug 09- 1 of 3 positive nodes in axillary dissection (yes only 3)
ER+ 90%, PR+ 20%, HER2+++
4 x AC, 4 x Paclitaxol and H (Neupogen for 7 cycles), Herceptin complete Nov 10
Mar–Apr 2010 25 Rads
Apr 10-Oct 11- Tamoxifen
Oct 11 – 3 cm met to sternum
Oct 11-Letrozole for 3 mths, start Clasteon-bone remodeller
Nov-Dec 11 - Happy 50th Birthday -20 rads to sternum
Jan-April 2012 Taxotere/Herceptin-6 cycles (Neupogen for 5)
Herceptin every 3 weeks-Letrozole added Nov 2012
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Old 02-17-2012, 02:14 PM   #2
Becky
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Re: Herceptin & Urinary Tract Issues?

Another culprit in all of this is the fact that even if you aren't hormone positive, chemo does put you into chemopause or outright menopause. This sudden drop in estrogen levels (compounded by aromatase inhibitors or even Tamoxifen) not only thins the vaginal wall but also thins the bladder. Until the bladder gets used to this, one can experience bladder infections.
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Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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