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Re: vascular invasion
Hi, Alli. I think many here who had positive lymph nodes freaked about the path report. There are quite a few of us here in our 30s are diagnosed at stage 3. Vascular invasion, yes i had 10 out 23 and that was after 4 chemos. My cancer cell broke away from my lymph nodes as well, i think it is called external capsular invasion. When my surgeon told me i had 10 positive nodes i said,um not too bad only 10. He didn't not say anything. Later i found out what it meant and i couldn't pull myself out from "google". It has been 10 months since i started 1st chemo and there were so many bad dreams after surgery when things eventually felt so real as my scars proved what happened- i had cancer. There are still gloomy moody days but it is getting better. I guess what i am trying to say that you will be fine. I eventually came to understand that living today is the most important. I used to worry sick about my prognosis but it really sucks to live in fear and worry. Easy said, it is tough. I hope you will feel better soon. There is a life after cancer, it is upto us whether we want to live it happy as much as we can.
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1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy
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Hybrid Mode
