NED Stage IV? Chemoless stage IV?

[KG1993]

Lori,
Thanks for the words. She is so fearful that she is going to feel like she does for the rest of her life (taking the chemo combo i mentioned earlier).

I will call her tonight and tell her what you said. She turns 62 tomorrow, so that should give her some GREAT news.

Chrissy,
I also talked to her earlier about what you shared with me!

Thanks so much. Again, we head for scan next week, so time will tell.

Merry Christmas,
Kim

[StephN]

Hello Kim -
I am also 62.

Was found to be stage IV with very extensive liver mets and a spot on my sternum, which I normally don't mention, but it was there.

A mix of drugs with Herceptin brought me to NED and I have never had any new mets come back since 2005. After taking Herceptin for over 7 years, I stopped just 3 years ago and am STILL NED.

Your mom may not have a complete response, but then again she might. The researchers are learning more about this disease every year and the new targeted therapies are not hard on a person as the traditional chemos. In this respect we HER2 patients are fortunate!

Tell your Mom there is hope beyond belief. I had to go through those hard months, but made it out the other side, to have a long run with Herceptin alone.

[KaiM]

Chrisy, your post was so well said. Thanks so much for for all the hope you give me.

I was diagnosed at Stage IV with mets to bones and liver. Had chemo w/ Herceptin in Jan 2007. Have been on Herceptin and NED since. So, it can happen!!