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Old 10-18-2011, 06:13 PM   #1
fauxgypsy
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Join Date: Apr 2007
Location: Mississippi
Posts: 600
Re: DIEP recovery?

Thanks Denise. I am still waiting on some information. I have spoken with the patient advocate in NOLO and am waiting for some information from the patient advocate at PRMA in San Antonio as well. How are you feeling?
Alice, it nice of you to share your experience. 20 years, huh? I really do hate the loss of sensation, although I do have some where my mastectomy was performed. A "ghost" breast is a weird feeling. That is why I have such mixed feelings about a prophylactic mastectomy on my left side. I see my omcologist in November and I am going to discuss it with him.
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In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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Old 10-18-2011, 07:16 PM   #2
alicem
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Location: Colorado Springs, CO
Posts: 430
Re: DIEP recovery?

Leslie,

It sounds like you are in my neck of the woods. You might want to also check out Dr. Spiegel in Houston. Here is her website link:

http://www.breastrestoration.org/

I highly recommend her. Her staff is wonderful and she is such a perfectionist that she does wonderful work. There is a photo album of before and after pictures on her website. She studied in Europe under the doctor that developed the DIEP procedure.

Also, not sure about your 20 years comment??
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9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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