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10-06-2011, 02:55 AM
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#1
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Senior Member
Join Date: Apr 2011
Location: Port Hedland, Australia
Posts: 382
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Lump in lymph node
Hi Everyone,
I am slightly panicked at the moment as I have had a lump in one of my lymph nodes (cancer side) that seems to disappear at will!!??
I was with the lymph OT the other day and told her about it she had a feel and said what this lump? Of course yet again I absolutely freaked out but tried to keep my cool - paid no attention to a word she spoke about for the next 20 mins only to tell her that it had gone again and sure enough she couldn't feel it??
I have since gone to my doctor, who works with my breast surgeon so should be in the know and got a referral for an ultrasound she couldn't feel anything and wasn't too concerned which relieved me immensely, HOWEVER the lump is back today and has been there all day I cannot rationalise it at all and can feel the stress levels rising.
Has anyone had anything like this happen to them?
Would this be a bad omen if it was a local recurrence whilst still in active treatment??
Will I get to sleep tonight??
Thank you for any insights offered
Jenny x
__________________
Diagnosed Nov '10 IDC whilst pregnant with 2nd child
Her 2 ++ ER/PR + but weak and patchy 50% + 5%
Left mastectomy Dec '10, 6cm tumour 1 of 2 lymph (micro mets)
Clear margins but lymphovasculer invasion
Stage 3a Grade 3
Fec 100 x 3 Jan '11 Taxotere X 3 and Herceptin X 1yr
Staging scans - CT brain & body and bone - May '11 - NED!!
Start Femara - in chemo induced menapause
25 Rads June '11
Dec '11 Menstruation resumed - zoladex inj monthly and Tamoxifen
Feb '12 Back on Femera and Zoladex
March '12 CT brain & body & bone scan all clear
Zometa x2/yearly
April '12 - Oopherectomy
Praying the Herceptin is as good as its hype!!
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10-06-2011, 03:54 AM
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#2
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: Lump in lymph node
Hi Jenny
Is the swollen node in your neck or collar bone area? As you know lymph nodes respond to other things as well as cancer, infection/inflammation being most common.I feel the fact it comes up and then goes down is a good sign. You also have two small children who often bring upper respiratory infections home and you may just be responding to that. Try not to panic too much yet, I KNOW its hard not to! I think you will feel better once you have had the ultrasound and then if there is still uncertainty a biopsy will put your mind at rest.
Hugs
Ellie
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10-06-2011, 04:05 AM
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#3
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Senior Member
Join Date: Apr 2011
Location: Port Hedland, Australia
Posts: 382
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Re: Lump in lymph node
Hi Ellie,
Thanks for the response, the lump is about 4 cm in from the armpit just above the radiated area. I did wonder about kiddie germs but could I really be that sensitive that the lump was my only symptom??
Jenny x
__________________
Diagnosed Nov '10 IDC whilst pregnant with 2nd child
Her 2 ++ ER/PR + but weak and patchy 50% + 5%
Left mastectomy Dec '10, 6cm tumour 1 of 2 lymph (micro mets)
Clear margins but lymphovasculer invasion
Stage 3a Grade 3
Fec 100 x 3 Jan '11 Taxotere X 3 and Herceptin X 1yr
Staging scans - CT brain & body and bone - May '11 - NED!!
Start Femara - in chemo induced menapause
25 Rads June '11
Dec '11 Menstruation resumed - zoladex inj monthly and Tamoxifen
Feb '12 Back on Femera and Zoladex
March '12 CT brain & body & bone scan all clear
Zometa x2/yearly
April '12 - Oopherectomy
Praying the Herceptin is as good as its hype!!
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10-06-2011, 04:43 AM
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#4
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: Lump in lymph node
Hi again
My chemo nurse had the same thing on and off for years whilst her son was little. She was fully investigated for bc numerous times but nothing and even had an opinion and investigations by a haematologist. Eventually when her son got to about 11 years it stopped!
That said please insist they check it out fully! You will then have some peace of mind.
Ellie
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10-06-2011, 04:52 AM
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#5
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Senior Member
Join Date: Apr 2011
Location: Michigan
Posts: 1,173
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Re: Lump in lymph node
Hi Jenny,
I had one also in the same area and my dr. said a tumor does not move it can grow and spread but once its in place it stays. Mine was inflammation and I hope and pray yours is also. Try not to worry until you have something for sure to worry about I have heard this said over and over again on this site. Gods blessings to you and your beautiful little family.
Your Friend,
Nancy
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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10-09-2011, 12:02 AM
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#6
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Senior Member
Join Date: Apr 2011
Location: Port Hedland, Australia
Posts: 382
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Re: Lump in lymph node
Thanks Ellie and Nancy for your supportive words,
The lump has now been there for quite a few days and I am doubting if it ever was transient or if I just stopped feeling deep enough - it is rather deep to find and sometimes I guess subconsciously you just don't want to find it?
Anyway as was feeling very anxious I called my onc! It is sunday here so you can imagine how bad I am!
He asked a few questions and has basically said its 50/50. He did say it would be classed as a local recurrence but was a little sketchy as to how bad that would show the Herceptin as working for me?? He said something about Herceptin being better against lung liver and bones than lymph??
Anyway I will let you know Tuesday how I go finger s crossed for me please!
Oh he did also say that it is not uncommon to get lumps other than cancer in the vicinity due to radiation scar tissue etc so hope like hell that is me, I have recently started back at the gym and swimming - I'm clutching at straws and rambling sorry.
Jenny xx
__________________
Diagnosed Nov '10 IDC whilst pregnant with 2nd child
Her 2 ++ ER/PR + but weak and patchy 50% + 5%
Left mastectomy Dec '10, 6cm tumour 1 of 2 lymph (micro mets)
Clear margins but lymphovasculer invasion
Stage 3a Grade 3
Fec 100 x 3 Jan '11 Taxotere X 3 and Herceptin X 1yr
Staging scans - CT brain & body and bone - May '11 - NED!!
Start Femara - in chemo induced menapause
25 Rads June '11
Dec '11 Menstruation resumed - zoladex inj monthly and Tamoxifen
Feb '12 Back on Femera and Zoladex
March '12 CT brain & body & bone scan all clear
Zometa x2/yearly
April '12 - Oopherectomy
Praying the Herceptin is as good as its hype!!
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10-09-2011, 03:29 AM
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#7
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Senior Member
Join Date: May 2010
Location: Melbourne, Australia
Posts: 434
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Re: Lump in lymph node
Stay hopeful Jenny. Glad you are seeing to the problem but I'm hoping it is nothing to worry about.
Trish
__________________
5/2004 (R) 30mm bre gr3 infiltrating ductal ca 16/18nodes er (2+) pr (3+) HER2 (3+)
6/2004 6 cycles(FEC), Oct 40 rads, Tamoxifen
5/2006 oopherectomy, Arimedex
12/2006 liver mets largest 9cm
1/2007 Herceptin,
3/2007 Taxol + Herc
1/2008 Herc alone
4/2008 Multiple bone mets,Zometa
7/2008 Herc + Gemcitabine
8/2008 Herc+Navelbine/vinoralbine
10/2008 Herc+Carboplatin+Taxol
12/2008 Tykerb+Xeloda
2/2010 Herceptin + trial drug
5/2010 Herceptin+Tykerb
8/2010 Tykerb+Abraxane
9/2010 Abraxane
12/2010 Abraxane+Tyk+Herc
4/2011 Tyk+Herc+Femara
6/2011 Liver and bone mets prog.Abraxane continue Herceptin,Tykerb,Femara and Zometa
8/2011 Probable liver progression and increased neuropathy. Xeloda with Tyk+Herc. Zometa 6 weekly.
9/2011 Liver progression,TM +++. Cyclophosphamide and Methotrexate metro Herc Zometa
10/2011 liver mets prog.Herc, 3 Tykerb +2mg decodron daily,Zometa
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10-09-2011, 04:19 AM
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#8
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: Lump in lymph node
Jenny sending you hopes and prayers for it to be b9! Please let us know.
Elllie
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10-09-2011, 10:21 PM
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#9
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Senior Member
Join Date: Apr 2011
Location: Michigan
Posts: 1,173
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Re: Lump in lymph node
Dearest Little Sis Jenny,
Please know that you and your Beautiful little family are all in my prayers! I will be waiting to hear good news on Tues.
Peace,
Your Friend,
Nancy
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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10-09-2011, 10:32 PM
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#10
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,809
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Re: Lump in lymph node
Jenny,
I'm so glad you were able to get hold of your oncologist 'on Sunday'. Waiting is always the hardest thing. Sending you good vibes.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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10-10-2011, 06:29 AM
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#11
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Re: Lump in lymph node
Jenny
You are right to get it checked...sending good vibes and lots of prayers your way that you willl find out its nothing to worry about.....the waiting is always so hard....
Positive thoughts!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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10-10-2011, 06:50 AM
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#12
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Senior Member
Join Date: May 2008
Location: Oregon
Posts: 110
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Re: Lump in lymph node
Hi Jenny,
I also had a lump appear on the side of my cancer right in my armpit. It was about the size of an egg and would get larger and smaller. Turned out to be cording of the tendon. The tendon would just retract into a ball. I went to a medical masseuse who as able to work it out
The first year after diagnosis is by far the scarriest with every oddball thing being suspect. Hoping and praying for you to just have a simple easy explanation and it checks out to be nothing to worry about
__________________
Henny
Dx 3/07 IDC and DCIS Her2+ ER- PR-
Stage IIb 1/15 nodes
A/C, Taxol, Herceptin
Bilateral mastectomies with recon
Zometa 2/yr for 3 yrs- finished 8/2011
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10-10-2011, 08:36 PM
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#13
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Senior Member
Join Date: Apr 2011
Location: Port Hedland, Australia
Posts: 382
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Re: Lump in lymph node
Ladies,
I am happy to report that for the first time in my life I am happy to be called 'fat' - fatty lump to be precise and oh what joyeous words they are! I was so relieved I cried on the table the sonographer said that since I was so upset she would tell me that in her opinion - which wasn't a Dr's it was nothing to worry about and my GP confirmed later the same!!
Thank you all so much for caring and replying it really means so much to come to this site and get support with no strings attached.
I called my onc to thank him for the Sunday phone call and he said no worries any time its his job!! I thought that was lovely.
Anyway today I have decided that I have had a few mouse days and now I will be lion again - I even had some 85% dark chocolate which I haven't been able to stomach since finding my fatty lump!
Love to you all
Jenny xx
__________________
Diagnosed Nov '10 IDC whilst pregnant with 2nd child
Her 2 ++ ER/PR + but weak and patchy 50% + 5%
Left mastectomy Dec '10, 6cm tumour 1 of 2 lymph (micro mets)
Clear margins but lymphovasculer invasion
Stage 3a Grade 3
Fec 100 x 3 Jan '11 Taxotere X 3 and Herceptin X 1yr
Staging scans - CT brain & body and bone - May '11 - NED!!
Start Femara - in chemo induced menapause
25 Rads June '11
Dec '11 Menstruation resumed - zoladex inj monthly and Tamoxifen
Feb '12 Back on Femera and Zoladex
March '12 CT brain & body & bone scan all clear
Zometa x2/yearly
April '12 - Oopherectomy
Praying the Herceptin is as good as its hype!!
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10-10-2011, 08:51 PM
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#14
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Senior Member
Join Date: Apr 2011
Location: Michigan
Posts: 1,173
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Re: Lump in lymph node
I am so happy for you Jenny. Gods blessings to you and your beautiful family! God is good all the time!
You must be so relieved!! I am for you!
Your Friend,
Nancy
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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10-10-2011, 09:16 PM
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#15
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Senior Member
Join Date: May 2010
Location: Melbourne, Australia
Posts: 434
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Re: Lump in lymph node
Wonderful news Jenny, love that fat.
Trish
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10-11-2011, 03:56 AM
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#16
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: Lump in lymph node
I am sooooooooooooooooooooooooooooooooooooooooooo happy today. What good news!
Ellie
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10-11-2011, 11:31 AM
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#17
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: Lump in lymph node
Very glad your scare turned out to have nothing to do with cancer!
My husband gets those fatty bumps. They are called lipomas, and usually do not cause any pain or irritation, just sit there and some get a little bigger. (He is on the lean side so those lumps really show up!)
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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