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Old 09-08-2011, 12:19 PM   #2
Ellie F
Senior Member
 
Join Date: Feb 2009
Posts: 1,526
Re: decision time: if you NEVER responded to tyk+herc did you respond to other her2 i

Hi FOB
So sorry to hear this news. I was really hoping that things would be stable.
What are the sites of the 9 tumours?
I wondered if any of the T-DM1 trials were still running here in the UK. I know they are randomised but you may be lucky and get in the right arm.
I understand your concern about being in a sub group but it may just be that your particular tumours are not responsive to your current treatment.
Wondered if now was the time for a second opinion? As you will be aware you are entitled to this free on the NHS. I believe that sometimes a new set of eyes is useful and if you pick a major centre they are likely to have access to the latest trials.
Is there an option for you to go abroad for treatment? I know you have done this before but it's costly.

Thinking of you
Ellie
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