My News

[Lori R]

Full of Beans,
It is wonderful to hear from you!!! It's been such a long time. Your post was a very inspirational reminder to keep plugging away and the right drug combo just might work.

I am about to begin Herceptin + Tykerb, so your post of good results is certainly encouraging. I definately need a boost of confidence, so thank you for posting.

Not so good about the sore bottom. But, as you've said...first things first. Glad Jessica could give you input on some ideas that worked for her.

Please keep us posted...don't be such a stranger. Lori

[fullofbeans]

Jml thank you so much for all of your advice!!!! I can see you know exactly what I am going throu.. I had a good friend wedding to go to in France which would have been lovely and a long break in my fight/anxiety but my bottom prob is stopping me, the idea to be away from home (and warm bath tub) is overwhelming.

Same: the hyperactive gastrocolic reflex (did not know the name, thanks) sometimes a simple bite of food and I would be in spasm/pain/ diarrhea..but like you if I don't eat I am fine (I have lost 10 pounds recently),I am now checking the scale to see if I am not getting underweight..

Does oxycotin work for you? I take tramadol but it does not help even 5 in few hours did not help (figuring i was not absorbing it). if I could have a way to stop the excrutiating pain I could go to the wedding and eat very little/high calory/fatty (i.e little BM) when i do not have the Hyp Gcolic reflex because of the fissure it still very painful..even with no diarrhea.

I know what you saying about getting that sorted but it would delay lungs treatment and like I said one of the tumour is threatening the lining.. don't think i can take the chance.

schoolteach: I have had 2 treatments already.., the last one last Friday. google PTACE/Frankfurt/Vogl for papers and info.

Cyberknife yes you can have more than one lung nodules treated but each is treated separately..I.e. the beam of radiation only treats one area per session..I would think depending on the size of your tumours you can treat 2 to 3 nodules (but check). The number of sessions will vary on tumour size how big are they?

Also if you just have a few tunours around 2-6cm also consider cryosurgery (even having both cyb and cryo not mutually exclusive..), because cryo has more immune response it seem. I beleive that is why my lymph node is not growing, i sometime get sharp pain in it which i take as a good sign that my body is attacking it. Never felt it when it was 2cm.. lots of dead cell with all the antigens act a bit like a vaccination in some cases.

All: thanks for you encouragement. I do not tend to posts about me (but i do about research) when it is going bad just the way I am I suppose.

X

[sassy]

Hey Beans,

I had the fissure problem and finally had surgery on it. It made a world of difference. Its a problem that just makes you miserable--lots of times I had to just stand up, couldn't sit because it was so painful. I also had a perirectal abcess that had to be drained and packed. Seemed like two ends of the spectrum for a problem on my "end".

I recommend the surgery--was not difficult to get over and made me feel like a different person!