Calling all stage iv sisters

[Ceesun]

Jackie you are amazing with your tally just checkin in with Ceesun now at a full five years! Cathy

[Jackie07]

[Introduced to one of our new members this thread which Jean had started in January. Then I noticed SoCalGal's tally (145 years for all 33 members) back in March. Thought I'd double check and add the ones after her posting. And I came up with 220 years and three months. [60 members* and 284* years as of July 9, 2011.]

I also noticed that many other Stage IV sisters are not on the list - the founder of this support group, Christine (NED 10 years) and AndiBB (NED 12 years), to name just a couple.

And it suddenly downed on me that I have survived my first diagnosis of stage I for 8 years. My recurrence in 2007, a Stage IIb, was caused by a series of failures - the surgeon thought she had had a clean margin, she didn't; the radiologist thought the shadow on the mammograms was 'scar tissue', it wasn't; my oncologist thought I was 'cured', he was wrong; my family doctor thought I was hypochondriac, he was also wrong ...

Will I have another recurence and become stage IV one of these days? Nobody knows. But just knowing the fact that so many of our stage IV sisters have beat the odds/on maintenance/receiving active treatment gives me confidence that whatever happens in the future, there is hope.

Thank you, stage iv sisters, for sharing your fighting spirit and triumph with us. 6-15-2011]

Name (Age at I.D.) ____Er Pr Her2 (Initial Diagn) Stage IV Diagnosis_________Clinical. Trials______Triumph years since Stage IV ___ (NED = No Evidence of Disease)

Adriana Mangus______ Er- Pr- Her2+ (June 1994) July 2003 Lung _____________________________ 7 year 11 months and counting
Ahoff (Ann) _____________________________May 2010 IBC ______________________________ 1 year 6 months and counting
Angela R __________________________ (2009) April 2011 _________________________________3 months and counting
Asahizuru _____________________ (1990, 1996) ....... 2002 Bones Spine ________________________ 9 years and counting
Barbara H _____________________ (May 1998) May 2004 Brain _____________________________ 7 yrs 2 months and counting (NED)
Ceesun (Cathy) __________________________ June 2006 Lung _____________________________5 yrs and counting
Chelee _________ Er+ Pr+ Her2+ (Dec. 2005 IIIA) Sept 2009 Bone _____________________________ 5 yrs 7 months and counting
Chrisy______________ Er- Pr- Her2+ (June2002) Sept. 2004 Liver _________T-DM1_______________ 6 yrs 10 months and counting
Colleen007____________________ Er- Pr- Her2+ Oct. 2005 Liver, spine, femur ___________________ 5 yrs 9 months and counting
CoolBreeze_____________________ (Aug 2009) May 2011 Liver _____________________________ 2 months and counting
CourtneyL ___________________ Er- Pr- Her2+ April 2008 Liver Lung (NED) Bone Brain ___________ 3 yrs 3 months and counting
DEBBIE S_____________________ Er- Pr- Her2+ Oct. 2004 Liver _____________________________ 6 yrs 9 months and counting
Deena H___________ Er- Pr- Her2+ (March 2010) Oct. 2010 Lung ______________________________ 9 months and counting
DMWARN [wife of]_________________ (1999) ......... 2000 Spine Lung _________________________11 1/2 yrs and counting
DianaMK _____________________ (Dec 2006) June 2010 Skin Lung ___________________________1 yr 1 month and counting (NED March 2011)
DQ1__________________ Er+ Her2+ (May 2009) Feb 2011 Mediastinal nodes Lung _______________ 5 months and counting
Emelie B__________________ Her2+ (Nov. 2006) Jan. 2010 Sternum lung liver bone _______________ 1 yr 6 months and counting (NED)
Fauxgypsy __________________ Er+ Pr+ Her2+ Feb 2007 Liver______________________________ 4 yrs 5 months and counting
Flossie ________________ Er+ Her2+ (Jan 2006) July 2008 Brain Rib neck _______________________ 3 yrs and counting
Hraby73 (Holly) _____________ Er+ Pr+ Her2+ April 2011 Liver Lungs _________________________ 3 months and counting
Hutchibk (Brenda) ___ Er+ Pr+ Her2+ (Nov. 2003) Aug. 2005 Chest nodes Bone Brain ___T-DM1 ______ 5 yrs 11 months and counting
Jenan ____________________ (June 2010 IIIA) April 2011 Brain (WBR) ________________________ 3 months and counting (all clean)
Joan M ____________ Er- Pr- Her2+ (Sept.2003) Jan. 2007 Lung Brain__________________________ 4 yrs 6 months and counting
Kathy T__________________ Er+ Her2+ (1984) Jan. 2003 Bone _________T-DM1 (2 yrs) _________ 8 yrs 6 months and counting
Kavy _______________________ (April 2005) Nov. 2005 Lung Liver _________________________ 5 yrs 8 months and counting
KDR (Karen) _______________ Er- Pr+ Her2 + June 2010 Liver_______________________________ 1 yr 1 month and counting
Kim in CA ____________ Er+ Her2+ (Feb 1997) Sept 2001 Liver ________ UW [Seattle]vaccine ______ 9 yrs 10 months and counting (6 yr NED)
Kim in DC ___ Er- Pr- Her2+ (Aug 1998) 2004IBC Feb. 2008 Skin Sternum _____T-DM1 (2 yrs) _______ 3 yrs 5 months and counting
Kmswilson __________ Er- Pr- Her2+ (Dec 2010) Jan 2011 Liver Bones ________________________ 6 months and counting
Krisvell ___________ Er+ Pr- Her2+ (June 2009) Jan 2011 Brain ______________________________ 6 months and counting
Lauriesh (Laurie) ____________________________ July 2010 2 Liver mets (RFA)_________________1 year and counting (4 months NED)
Linda b ___________________________ Er+ Her2+ Jan. 2007 Lower back & Neck ________________4 yrs 2 months and counting
Lori R _________________________ Er- Pr- Her2+ Oct. 2007 Liver _____________________________3 yrs 7 months and counting
Mamacze _____________________________ (2001) 2004 Liver and lungs ___Seattle Vaccine ________7 yrs and counting (NED)
Marilyn_______________________________(2000) July 2001 Bones____________________________10 yrs and counting
Mary L____________________________(Oct 2003) July 2004 Skin______________________________7 yrs and counting (NED since Oct 2007)
Missyw _____________ Er+ Pr+ Her2+ (Jan. 2001) Aug 2006 Liver ______________________________4 yrs 11 months and counting
Mtngrl (Amy) (56) _____________ Er+ (April 2011) May 2011 Liver _____________________________2 months and counting
Nancy L_______________ Er- Pr- Her2+ (Sept 2004) Feb 2009 _________________________________2 yrs 5 months and counting (NED)
Nsebesta _______________________________ (2001) May 2004 Liver __________________________ 7 yrs 2 months and counting (NED since 2005)
Pam P_________________ Er+ Her2+ (June 2001) IBC Sept 2002 Bone Brain (WBR)______________ 8 yrs 10 months and counting
PatE _______________________________________Oct 2007 Liver spine ________________________3 yrs 9 months and counting (NED)
pibikay (Hema) ____________ Er- Pr- Her2+ (2010) March 2011Vertebrae, Liver _________________ 4 months and counting
Radiant __________________ (2005) 2010 Liver & Soft Tissue Mediastinal nodes ________________ 1 yr 7 months and counting
Schoolteacher (Amelia) ______________ Nov 28. 2007 L4_____________________________________3 yrs 7 months and counting (NED since 4-16-2008)
Sheila (49.99) ___________ Er- Pr- Her2+ (Feb 2002) Sept. 2003 Neck nodes_______T-DM1(3)________7 yrs 10 months and counting
Sherryg683__________________________________Dec 2005 Lungs ____________________________ 5 yrs 7 months and counting
SoCalGal_____________(1996; 2002) March 2007 Lung Sternum 2008 NED in Brain_______________4 yrs 4 months and counting
StephN ___________________________ (Sept 2000) Jan 2002 Liver (NED) 2005 Brain (NED)_______8 yrs 6 months and counting (NED since 2005)
SuThorn _______________ Er+ Pr- Her2+ Sept. 2007 Liver__________________________ __________3 yrs 10 months and counting (NED since 1-2008)
tammymarie1971(30) ____ Er+ (Dec 2001) 2004 liver 2005 Spine/Hip ____________________________7 yrs 4 months and counting
Tonya ___________________________ Aug 2006 Liver_______________________________________ 4 yrs 11 months and counting
TriciaK ________________ Er+ (1985) 1990 spine, 2004, 2010 lung _____________________________ 21 years and counting
Trish ____________ Er (2+) Pr (3+) Her2 (3+)(May 2004) Dec. 2006 Liver 2008 Bone ______________ 4 yrs 7 months and counting
Unregistered _____________________ Jan. 2007 ____________________________________________ 4 yrs 6 months and counting
Vicky____________________________March 2011 Liver Spine________________________________ 4 months and counting
Vivienne [Mom of]_________________March 2011 Liver______________________________________ 4 months and counting
Yankeebikachic (34)________(April 2006 IIIC) July 2008 Nodes in sup. clav.______________________ 3 yrs and counting (NED)

Total 60 members* and 284* years as of July 14, 2011

From NancyL: "Go to http://www.mbcnetwork.org/ and read stories about women who have been metastic for many many years. I also have a good friend, Stage IV for 11 years, continuously on Herceptin and doing well."

*Including Christine and AndiBB and those who have posted on this thread.

[Jean]

Jackie you are amazing!!!!!! Just amazing...220
Very impressive.
It is extremely moving to read all the different stories from our sisters. The strength, courage and fighting spirit and beating the odds. God Bless Each One each day.

Jean