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Chemotherapy Permanent Hair Loss

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03-16-2011, 06:42 PM	#1
Cal-Gal Senior Member Join Date: Jun 2009 Location: Los Angeles, CA Posts: 309	Re: Chemotherapy Permanent Hair Loss not complete loss-but my hair is much thinner than it used to be- __________________ DX: 11/08 Age: 53 Surgery: 1/09 Bilat Mastectomy, no reconstruction ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm DCIS-11 cm All tumors Grade 3 All tumors ER-0%/PR-0% All tumors HER2+ IHC-all tumors Overexpression/borderline FISH 2 tumors Her2-Negative FISH 2 tumors Her2+ Equivocal Stage I, 0/1 nodes LVI-Indeterminate(treated as positive) SPR Score 8/9 Ki-67 20% BRCA genetic test 1/2=negative Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta Herceptin: 6/12/09-6/4/10 52weeks HNPCC genetic test: negative Port Placement-9/23/09 Port Removal 6/25/10 Echo's every 3 months-All normal 2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets-- 6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged 1/10-PET/CT-uptake in nasopharynx- 1/10-MRI All normal 6/10-Bone Scan-clear 12/10-PET/CT-All Clear-NED 12/11-PET-All Clear-NED 12/12-PET-All Clear-NED 12/13-CT w/contrast Head, Torso-All Clear 12/14-CT w/contrast Head-All Clear 2/15-Core needle biopsy-R scar line

07-11-2011, 10:00 AM	#2
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Re: Chemotherapy Permanent Hair Loss The link in the post above goes to a legitimate site. It does focus specifically on TAXOTERE and hair loss. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.

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