Chime in please! Has herceptin (or tykerb)affected your eyebrows/lashes,fingers/toes/

[MJo]

It's been 5 years, but as I remember

1)were you ever on herceptin alone - After chemo and radiation ended, I was on Herceptin alone for for about three months.

2)how long after chemo were you on herceptin - I think I got Herceptin and Taxol at the same time

3)was anyone on herceptin without chemo - No. I had chemo

4)were you also on antihormonals - Yes. Started on Arimidex during radiation

5) a)did you notice any problems with your eyebrows ?b) eyelashes?c) did they preceed herceptin, d)did they get better/worse on herceptin.e) did they get better after herceptin stopped?

Lost the hair on my head with A/C. Then, with Taxol, my face and the rest of my body went bald. For me, losing eyebrows and lashes was worse than losing my head hair. My hair grew back quickly after Taxol ended, even while I was geting Herceptin.

My fingernails turned black.

6. Switched to Femara after two years on Arimidex. Fortunately I have a thick head of hair, because I definitely think that it falls out a lot more than in the past and I think it's the Aromatase Inhibitors.