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Old 11-11-2010, 07:14 AM   #1
Mary L
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Join Date: Nov 2010
Location: PA
Posts: 297
Re: Over 8 years and counting

Hi Juliet. I am a new member and I am also an 8 year survivor of stage IIIB IBC I was so happy when I saw your story on the IBC site. There are not alot of us around. Actually, we are truly blessed. I was diag. 2003 and given the usual chemos, mastectomy, followed by rad. It came back 9 months later apparent by the raised, red inflammation that was spreading across my mastectomy site I had two options, one was very drastic surgery that more than likely get all the cancer cells or try this new cancer drug, Herceptin. I started the Herceptin along with Carboplatin the next day. In 3 weeks the inflammation was fading and in 3 months it was all gone. I stayed on Herceptin for 5 years only stopping when my heart tests showed that it was affecting my heart. I had 3 recurences when I was off the Herceptin but when I went back on he cance would disappear. I have been cancer free and off herceptin for 3 years this Oct. 2010. I would love to hear from you. Also congratulations on your 8 year survival! Mary L
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Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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Old 11-20-2010, 09:31 AM   #2
mommaS
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Join Date: Jul 2010
Location: Seattle
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Re: Over 8 years and counting

Juliet:

Congratulations, I hope to get their too. I seem to be in a bit of deep hole right having been just diagnosed with brain mets. I will try and connect with Leslie but would love to hear from others who made in through this part of the journey.

Sharon
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1/7/10 Diagnosed IBC while BF twins a pleomorphic infiltrating lobular carcinoma; 12x9 cm; ER+, PR+, HER-2/neu++; Ki-67 80%
1/25/10 MRI of brain/scan of bone neg-
1/27/10 PET Scan-hypermetabolism in left breast axillary; right mediastinal, left and right supraclavicular and internal mammary lymph nodes
1/29/10 Port Placement, started 24 weeks of chemotherapy with: Trastuzumab- Herceptin, Paclitaxel- Taxol, and Vinorebine- Navelbine
7/9/10 Finished 24th chemo treatment
7/15/10 PET/CT showed excellent response in nodes and breast; possible bone mets
7/16/10 Began Herceptin@ 3 wks and Zometa @6 wks plus Lupron and Femera
7/29/10 Diagnosed with HER+,ER-,PR- skin mets; started Doxil & Cytoxin; no response
11/5/10 PET/CT mets to bone, liver, lung, adrenal; started Xeloda
11/12/10 Brain MRI-Brain Mets, stopped Xeloda, started WBRT 11/16 and Tykerb on 11/19
12/6/10 completed 15 rounds WBRT
12/19/10 restarted Xeloda

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