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Old 11-02-2010, 11:28 PM   #1
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Re: Just diagnosed on 9/23/10.

Rejoyce,
That is wonderful news...now you can finally move forward. I'm glad your cardio doc gave you the green light to go ahead with Herceptin. That will give you peace of mind and that's important. Great ECHO results.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 11-03-2010, 06:51 AM   #2
Becky
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Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Re: Just diagnosed on 9/23/10.

Dear Rejoyce

Perhaps the difference in the 2 tests was that your Muga reading was actually someone else's. You know your Echo was yours because the technician gave you a pretty clear indication that you were around 60% during the test but perhaps they got your muga mixed up with someone else's. Maybe not. Just thinking out loud here.

I am sorry you have had to join our little club here but we are here to support you through your journey. Herceptin has changed the face of Her2+ breast cancer. Come here whenever you need someone. Someone is always around to give you support.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 11-03-2010, 12:51 PM   #3
Hopeful
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Join Date: Aug 2006
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Re: Just diagnosed on 9/23/10.

Becky,

I was also told at the testing center where I had my MUGA's that it was important to have all your MUGA's done on the same machine, and preferably with the same tech, if possible, because there is variation from machine to machine and tech to tech. Rejoyce's facility could have had an issue with the machine or the tech, too.

Rejoyce, I really like your screen name! Best of luck to you with your treatment plan.

Hopeful
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