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Old 08-11-2010, 09:47 AM   #1
TanyaRD
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Join Date: Sep 2009
Posts: 358
Re: Vitamin D Test Results

Vicky,
Don't let it worry you. You are right. It will be checked again. Did she say when she'd recheck it? 6 months might be a good time span for reassessment and adjustment in dose as needed.
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Old 08-11-2010, 11:52 AM   #2
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: Vitamin D Test Results

Hi -
Carol mentioned the Carlson's D Drops. I have also discovered those and take every night right after dinner under my tongue. I also then take an evening calcium supp which also has another 200mg of D3.

My next blood work will be taken this Friday, so it will be interesting to see how my D level is this time.

Since I now have some sun damage on my face, I am not getting much sun this summer. Interesting about the washing after sun that R.B. mentions. If I am getting sun while working outside, I usually take a quick shower to clean up, and never thought I was affecting my vitamin D intake by doing that. (Besides the general garden grunge, I want to get the pollens from the air off me.)
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MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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