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Old 07-27-2010, 05:19 AM   #1
Lori R
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Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
Re: Bad Scan
Dear Tonya,
I am so sorry to hear that you must gather the strength to beat go another round.

As you know, it is as much a mental battle as a physical one. Take a deep breath and work with your Onc. to pull out the next arrow.

Are you confident in the choices your onc is making? With IBC, have you considered a specialist in the field? Maybe TDM-1 would be your silver bullet.

We'll be sending you warm hugs and gentle support.

Lori
__________________
2007
Oct - Diagnosed - Stage IV
5 c.m. IDC - Left Side er/pr- Her2+++
Node + 2/14 - Single Liver Met
Double Mastectomy
Nov - Begin T+H
2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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Old 07-27-2010, 06:35 AM   #2
caya
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Location: Thornhill, Ontario Canada
Posts: 2,320
Re: Bad Scan
Sorry to hear your sad news Tonya. Hope the oncs. figure out the best way to banish that met!!

hugs and prayers to you and your family.

all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 07-27-2010, 07:19 AM   #3
PinkGirl
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Location: Canada
Posts: 2,193
Re: Bad Scan

Sorry to hear this Faith. Please know that we are all here with you, beside
you.
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PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09


" I yam what I yam." - Popeye

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Old 07-28-2010, 07:37 AM   #4
Ceesun
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Posts: 869
Re: Bad Scan
Thinking of you, be strong...another action plan is in the works, I'm sure. Ceesun
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