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Old 06-24-2010, 07:05 PM   #1
fullofbeans
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Just a tip if you have diaerrah and it makes it painfull....

Hi peop,

just a quick message because wanted to share this tip, because well I found it works for me. I have to warn you it is a bit personal but what the heck.. when you have diaerrah usually all around you anus becomes sore etc.. well I have used aloe vera (actual plant leave) that I rub quickly and also cut a tiny bit that I insert it and literally in a very short time I am fine again, that 's gotta beat steroidal cream.. anyway seems to do the trick for me, may work for you if you also had same type of prob..

I am hesitating to submit this thread due to it's personal nature but the those little prob are a real pain in the..;-)

hope all of you well..I am in good fighting spirit and looking for cryosurge my tumours soon, I know I need to update my signature..bah..
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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Old 06-24-2010, 07:16 PM   #2
Jackie07
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Re: Just a tip if you have diaerrah and it makes it painfull....

Thanks for your 'expert' tip. Glad you've found something that works.

[Now we know how you decided on your user name ] Good luck to your cryosurgery. Be sure to let us know the time and place when you are ready for it.
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7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
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Old 06-26-2010, 01:57 PM   #3
tricia keegan
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Re: Just a tip if you have diaerrah and it makes it painfull....

Thanks FOB, I could have used that tip during chemo five years ago lol....

I don't think it's too personal either, when faced with so many side effects from this disease it's great to hear of anything that helps!

My best wishes to you too!
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 06-26-2010, 03:44 PM   #4
BonnieR
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Re: Just a tip if you have diaerrah and it makes it painfull....

Hey, once you've experienced what we have, all modesty goes out the window! Hopefully your experience will benefit others.
Keep the faith.
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Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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