Bad news, no longuer NED - HER2 Support Group Forums

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Bad news, no longuer NED

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05-21-2010, 10:37 AM	#1
mmoons Senior Member Join Date: Oct 2008 Location: Detroit, MI Posts: 205	Re: Bad news, no longuer NED FOB- Please try to remember how you felt the first time you were told you were NED. Hang on to that feeling....because you WILL get that news again. I hope you feel all the love and prayers and support coming your way, FOB! We are all cheering you on as you defeat this wretched disease again!! Maureen __________________ Maureen My loves IDC & DCIS, HER2+++ Diagnosis: October 1, 2008 Tumor: 6.8 centimeters, never showed on mammograms ER-/PR- November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer Stage IIIc Lapatinib Clinical Trial start: November, 2008 Surgery: May 5, 2009 Started Herceptin: May 19, 2009 Started Radiation (33 rounds): June 10, 2009 September 2009: Moved to Michigan to be closer to family 12/09 - still on Herceptin until May 2010 August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther) Blog: http://moonsfamily.blogspot.com

05-21-2010, 10:49 AM	#2
michka Senior Member Join Date: Feb 2007 Location: Paris, France Posts: 858	Re: Bad news, no longuer NED FOB, just sending love and strength. Michka __________________ 08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20% FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex 12.2010 Mets to liver,Herceptin+Tykerb 03.2011 Liver resection ER+70% PR- 04.2011 Herceptin+Navelbine+750mg Tykerb 06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum 11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin 02.2012 Mets to lungs, nodes, liver 04.2012 TDM1, Ned in 07.2012 04.2015 Stop TDM1/Kadcyla, still Ned, liver problems 04.2016 Liver mets. Back on Kadcyla 08.2016 Kadcyla stopped working. mets to liver lungs bones 09.2016 Biopsy to liver. no more HER2, still ER+ 09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife 01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere 02.2017 30 micro mets to brain breathing getting worse and worse 04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven 06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms

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