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Old 05-17-2010, 10:07 AM   #1
wlproctor
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Join Date: Jun 2009
Location: Hixson, TN
Posts: 12
Re: Has anyone expericenced an ugly rash on their face and neck from treatments?

Herceptin can cause an acne type rash. I get it on my face a week after every infusion.
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Diagnosed 3/13/2009 from FNA, 39 years old.
4/09 lumpectomy with SNB, did not obtain clear margins.
5/09 - BMX with full axillary dissection on right side.
Final pathology report: 4cm+ high grade DCIS tumor with micro-invasive idc, 2/32 lymph nodes, ER/PR-, Her2+++, Stage IIa

7/09 - started TCH, finished 10/09
11/09 - 9 more months of Herceptin, finished 7/10

Reconstruction scheduled for Jan 2011

Expander placement completed - January 2011
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Old 05-17-2010, 10:53 AM   #2
StephN
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Location: Misty woods of WA State
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Re: Has anyone expericenced an ugly rash on their face and neck from treatments?

Hi Ladies -
Welcome to HER2 forums.
Many here have had rashes appear. Mostly we could count on Taxotere and Tykerb to be the main culprits, but occasionally another drug can give this appearance.

I did not have the exact combo you are taking, but did have Taxotere, which gave me the characteristic light rash and blush on the second or third day.

Herceptin is another matter. I took that for about 8 years and never had anything close to a rash from that.

We have a VERY long thread here called Herceptin Side Effects, Real or Perceived. You might read through that and see what the posters have to say.
http://her2support.org/vbulletin/showthread.php?t=23696

All the best!
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.

Last edited by StephN; 05-17-2010 at 10:57 AM..
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