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Old 03-06-2010, 06:48 AM   #1
VirginiaGirl
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Join Date: Oct 2006
Location: Fredericksburg, VA
Posts: 93
Re: Stomach Sounds-yikes :tykerb-herceptin combo

Ceesun,
I went to see a holistic nurse before starting the tykerb/xeloda and she has me taking a probiotic (which is good bacteria like in some yogurts only thousands more of them, can find it at a vitamin store) to help with the big D, and it does seem to help! I believe it may help with the gurgling gassy tummy, too. Also, she has me eating (or trying to) a baggie of fresh veggies (celery, broccoli, carrots, snap peas, etc) and a banana a day for fiber and bulk and vitamins, and I believe that helps, too. I have good luck with immodium, but would prefer to get more control more naturally if I can.

Jessica - I too have the "morning bathroom rush" from bedtime tykerb but usually it's done before I have to go to work, thank goodness! And, I've been keeping Desitin in the back of my mind in case I end up having to go there, too! Others on this site have recommended that, too, I just haven't tried it yet!

Good luck!
__________________
Liz
3/05 Initial dx invasive dc 2 cm lump, age 39
lumpectomy & 3 of 5 nodes +, ER+/PR+, Her2+++
alternative chemo 5/05-7/05, rad 8/05-10/05
7/06 dx mets to vertebrae, pelvis & chest lymph nodes
8/06 - 10/06 tamoxifen, herceptin, oophorectomy & zometa
11/06 PET/CT showed continued bone mets, new spot on liver
12/06 began taxotere/herceptin 1x/3 weeks,
2/07 - 2-08 NED!
3/08 progression, start taxol/herceptin weekly, monthly zometa
8/08 start ai & herceptin
12/08 - progression, start weekly navelbine/herceptin thru 6/09 & monthly zometa
7/09 - PET/CT showed improvement in spine, but 2-3 lymph nodes in chest became active
9/09 - 11/09 - weekly abraxane/herceptin
12/09 - PET/CT - chest lymph nodes resolved, progression in spine & pelvis
2/10 - 6/10 - start tykerb/xeloda, progession in spine & pelvis
7/10 - start taxotere/carboplatin/herceptin

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Old 03-06-2010, 11:55 AM   #2
Barbara H.
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Join Date: Sep 2005
Location: Newton, MA
Posts: 951
Re: Stomach Sounds-yikes :tykerb-herceptin combo

I only take 4 tablets and haven't had much of a problem. I have had problems with gas, which can keep me up at night. I tried Beano, which works, and I haven't used it lately. I have only had the runs a few times, and didn't take anything for the situation. That happened when I ate a lot of salad and fruit. Now I eat everything. I do eat yogurt for lunch with probiotics.
I did have a rash when I started Tykerb, but it disappeared after about a month. I am not fatigued on Tykerb and Herceptin, and in reality, don't feel as if I am on any drugs. This May I will reach my 6 year mark with metastatic disease. When I was first diagnosed it was detected everywhere including the brain, except in the bones. Heceptin alone cleared everything else, but it was detected a year and a half later in the bones. Fortunately, my markers are currently normal, and whatever is in the bones is not measurable. Injury, even former breaks to bones always show up on a bone or CT scan, so I assume that I am currently NED.
Best wishes,
Barbara H.
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Old 03-06-2010, 02:58 PM   #3
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Wink Re: Stomach Sounds-yikes :tykerb-herceptin combo

Hi Ladies -
I do not take Tykerb, but get occasional stomach rumblings from other various and unknown reasons.

While making my supplements run recently I decided to ask at that store for something that would work when I was having the problem.

They recommended and I got "RAPID RELIEF" Digestive Support for gas and bloating. Gaia Herbs makes it. Just one capsule and my trouble was over! It contains fennel and other natural substances plus vegetable charcoal.

The label on the back of the bottle says "may interfere with absorbtion of drugs" and to check with doctors before taking. But I don't see how this could be worse than the other things that are recommended.

Anyway - wanted you to know this has worked immediate wonders for me.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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