Tykerb Only

[Joe]

Sharon,
Who told you to stop taking Tykerb due to the rash. Generally a rash is an idication tht the Tykeb is working.

Regars
Joe

Thank you Joe for your response.
I was concerned I was having an allergic reation to tykerb and called my oncology doctor who told me to stop.
I contacted another onocology doctor that I see for second opinions and was told sometimes if you stop and restart you may or may not experience this rash again. She also told me if my rash is severe to contact their cancer-therapy dermatologist.
My rash was really severe (all over my back, chest, abdomen, arms, legs and neck).
I am going to try a lower dose to see if the rash is as severe.
I have not read any other postings or comments from anyone that experienced this type of rash. Almost everyone I have read had a localized/mild rash.
If anyone has experienced a severe all over rash what did you do?
Did the rash eventually get less severe? Did they have to stop Tykerb altogether?
Thanks Sharon

[yankeebikachic]

My face chest and back had reacted to the tykerb/xeloda. I continued on with mine though, my onc just gave me some creme and actually, after a while I just got used to it. When I dropped the X and kept going with ty, I did get better. It is not so much on the face as before, chest is much better and back is too. I'm on 5 pills daily.
Beth