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Old 01-02-2010, 05:01 PM   #1
Cal-Gal
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Join Date: Jun 2009
Location: Los Angeles, CA
Posts: 309
Re: How do you help others with Cancer?

I am a new bc survivor and have not been asked to be a bc buddy--

From my experience what helped was my 'bc survivor' buddy--I met her through
Hester Hill Schnipper who I emailed from an online blog--she (Hester) was great and reached out to her network to find someone for me--my buddy was there for me to answer all my questions and support me through chemo--she was an online buddy--also for me receiving notes cards and special 'small' homemade gifts like hats etc from various friends--really helped to boost my morale--

AND NOW=of course this group has been so helpful in the next phase of my treatment the Herceptin--

Love to all--
PS Sheila, the angel network sounds like a fab organization!!!
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED

12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line

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Old 01-02-2010, 07:25 PM   #2
Mary Jo
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Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
Re: How do you help others with Cancer?

Hi Tonya,

Being there for others and helping them through their cancer dx, treatment etc. has been the most rewarding thing to come my way since my dx.

For starters, I joined Reach Through Recovery through the American Cancer Society however, I get more calls and requests personally than I do through them.

What I find is the most helpful for those going through their dx and treatment is just being their for them. Whether it be over the phone.....in person....but as others have said, listening. Also, while I was going through treatment, I got a card from a couple of people weekly. People that weren't even that close of friends. Just knowing I wasn't forgotten was so helpful. The notes came with messages of encouragement.....reminders that I was being prayed for and sometimes trinkets with messages of hope.

Those are the types of things I now do for those in that "boat." Also, like you I have offered to sit with them at chemo and one person has taken me up on that. Mainly though, I offer to pray....and do....and I keep in touch via the phone and cards with personal notes of encouragement.

So nice of you to want to help - I bet you are a very loved person Tonya....You are special.

Love and hugs,

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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