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Old 12-28-2009, 04:58 PM   #1
BonnieR
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Join Date: Jun 2007
Posts: 2,210
Re: Bilateral mastectomy support group

Marilyn, one of the problems with lightweight prosthetics for me is that they ride up in a bra. Not heavy enough. And the whole thing migrates towards my shoulders! lol. And I find that bras cut into my chest and under my arms. I have not yet found a comfortable solution.
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Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 12-28-2009, 05:16 PM   #2
freyja
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Location: Eugene, Oregon
Posts: 347
Re: Bilateral mastectomy support group

I do all sorts of performance and ballroom dance, mostly modern dance and improvisation (if I was an exotic dancer I might feel differently about the reconstruction issue) and I'm now beginning a career teaching dance improv to people with and without disabilities, with an organization call Danceability International. It's all about embracing our physical differences...so I'm well qualified! I'm glad you're getting so many helpful responses to the thread. There are a lot of us out there, and we all handle it our own way.
Celeste
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"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.

"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)

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