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Old 12-23-2009, 02:29 PM   #1
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: vickie h update

Dear Vickie and Cap -
Want you to know you are thought about, and all best wishes for a healthier new year to come. My prayers are sent your way for continued response to the new treatment.

Peace, joy and understanding.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 12-23-2009, 02:55 PM   #2
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Re: vickie h update

Hi Vickie & Cap, Just wanted to let you both know I continue to keep Vickie in my thoughts and prayers. I hope shes contining to get a good response and that the side affects aren't to hard on her. Please let her know she is thought about and how much we love her.

You two have a very Merry Christmas, and may the New Year bring you improved health and much happiness. Again, always in my thoughts & prayers!

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 12-23-2009, 07:36 PM   #3
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Re: vickie h update

Thank you all for your good wishes and love. I read your emails to Vickie almost everyday. She has been such a trooper and has now been able to remove all of the dressings over her right breast and back as the bleeding has subsided. She is extremely tired these days and I've never seen her this low on energy. Some days she is in bed almost the entire day, other days she forces herself up and takes small walks or visits with friends. All in all, she is doing much better as far as the mets (we think). Last week she had a Passport put in because her other port is covered by tumors and they could no longer access it.
We go back to Idaho on the 28th of this month and on January 18th she'll have a ct scan to see if this is working. Please continue your prayers for her. She cries when she thinks of all of her wonderful sisters and brothers here, tears of joy for your friendship and compassion. Please know that not a day goes by that you are not in her heart and prayers. Have a very Merry Christmas, Hannuka and Kwanza.
Much love from our family to all of you,
Cap
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