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Old 12-18-2009, 06:33 AM   #1
Sandra in GA
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Join Date: Aug 2009
Location: Moultrie, GA
Posts: 431
Re: Herceptin/MUGA Scan

Robind,
I hope this gives you some comfort. I understand your stress and confusion over a change of plans, however I will share my recent experience with you. I have just completed the treatment phase of a phase II study down at Mayo in Jacksonville. It was to look at the cardiac safety and tolerability of Herceptin and lapatinib (Tykerb). I had my last Herceptin Nov. 10th and took the last Tykerb NOv. 17th. During the study I had an echocardigram every three months. I saw my onc. Dec. 10th after I finished and he did not order another echo on my completing the Herceptin. I can tell you also that even though I didi not reaalize I was extremely fatigued, I am feeling better and better each passing day. I know my heart is stronger even if I had no problems during my treatments with my scores. I hope you will soon begin feeling stronger and stronger also. This feeling of strength will let you know you are doing well.

I also feel sure that since this study looked at the cardiac safety, if an end of treatment measurment was needed, aother echo would have been done.

Take care and have a Merry Christmas!

Sandra
__________________
Diagnosed: 7/25/08 ~ age 63, no family history
Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
Radiation: 25 rads
Vaccine: Walter Reed GP2/AE37 vaccine study ~ last booster 9/17/2012
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Old 12-18-2009, 06:25 PM   #2
robind
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Join Date: Aug 2008
Location: Central,New Jersey
Posts: 48
Re: Herceptin/MUGA Scan

Sandra in GA. Thanks for answering and sharing. So, now I have a question and I never thought of this before. Why do a muga is an echocardiogram is the same or as effective???
I've been most fortunate. I've felt terrific and strong truly since the end of last January when radiation was over. I never had any real difficulties while getting Herceptin, including fatigue. I realize, I truly was fortunate. I do feel though that because I was so ill during the months of chemo, which included infection on top of infection and needing blood transfusions...I did deserve a break...Herceptin was okay for my heart as all my MUGA's were in the 60's.
The best to you, I hope you are getting your strength back and feel better and better each day. Have a wonderful Christmas, and best wishes for the new year. I hope for good health for all of us. Robind
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