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Re: The weakly er+ group
Hi Dianne,
Yes, I'm still taking Herceptin and will be on it until next summer. I've noticed that I get tired earlier at night and usually fall asleep much earlier than I used to but I don't think I can blame it all on Tamoxifen having three little ones (very energetic ones). I hope to be able to endure the SEs - as I told my oncologist and surgeon, I just want to live (don't we all) and will take whatever drug that comes my way that can be beneficial. I was shocked by my diagnosis having had no family history and breastfed all three kids until they were two years old.
But now that I've had it, I'm trying to learn as much as I can about the disease and hopefully help researchers toward better drugs, treatments, and ultimately a cure. I'm learning about breast cancer research advocacy opportunities and trying to stay involved as much as possible.
Thanks for your post! Hopefully we'll hear from many others.
Marcia
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ER+ (30%)/PR-/HER-2+, stage 3
Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin
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