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Old 11-16-2009, 03:44 PM   #1
ElaineM
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Wink Dense breasts linked to return of breast cancer

http://www.caring4cancer.com/go/canc...109elin020.xml
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http://her2support.org/vbulletin/showthread.php?t=48247
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Old 11-16-2009, 05:21 PM   #2
tricia keegan
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Re: Dense breasts linked to return of breast cancer

Elaine, I was told in my 20's I had dense breasts, I was relived at the time and thought no more of it as my children were young.
However I now wonder looking back if this had anything to do with my bc dx.
Interesting !
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 11-16-2009, 07:34 PM   #3
v-ness
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Re: Dense breasts linked to return of breast cancer

interesting. i've been told for all my mammogram history that i have dense breasts. like a 20 yr old, they told me. i thought that sounded like a good thing! (especially since i'm 49). now i don't think it's so great since they have such a hard time seeing through them, and they scared the crap out of me calling me in twice and running a total of 7 x rays on my right breast after my left one was diagnosed.

i had to fight tooth and nail to get my right breast mammogrammed after i found the tumor in my left one. the surgeon and oncologist dismissed it as highly unlikely but every regular person i told, plus my shrink (an MD) thought it was lunacy not to make sure the right one was clean considering that the tumor had grown in 5 months time. finally my shrink wrote the mammo order because my obgyn was on vacation. when i finally met with her, her first words were "have they check your right breast yet?" HELLO! THANK YOU! would it have killed anyone to just write an order if only to give me piece of mind? thank god for a shrink who cares about my boobs.

valerie
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8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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Old 11-16-2009, 08:05 PM   #4
Laurel
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Re: Dense breasts linked to return of breast cancer

I also had dense breasts. When I was dx'd with BC they did magnified views of both breasts. What amazed me is that the diseased breast had extensive DCIS which showed very prominently on the magnified view. If magnified views had been performed with my annual mammos my BC would have been dx'd years earlier. I now tell all women who are told they have dense breasts to ask, no demand, magnified views with every mammo!
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Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 11-17-2009, 08:47 AM   #5
Colleens_Husband
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Re: Dense breasts linked to return of breast cancer

This is Lee ranting so you can probably disregard everything I say without missing anything.[rant = on]

This morning I asked Colleen if she had dense breasts or not. Her answer wasn't too much of a surprise. She said she had no idea. Well since Colleen doesn't go around feeling other women's breasts for denseness, then her answer is completely understandable. So how are women supposed to know how dense comparatively their breasts are unless a medical professional tells them?

I certainly knew Colleen had extremely dense breasts, but then again examining breast density was an avocation of mine when I was between the ages of 17 and 25. Unfortunately, I had no idea about the link between breast density and breast cancer. If I had, then I would have badgered Colleen into getting yearly mammograms starting at age forty. Oh well, hindsight is 20/20.

I am wondering if political correctness run amok is preventing health care professionals from mentioning the breast density to a woman. I can certainly see a male GP getting sued for mentioning anything about a woman's breasts. Since breast density is an important or serious risk factor for breast cancer, then shouldn't every breast exam have some mention of breast density and its implication in terms of cancer risk? Since the new guidelines (I will rant about those in the future) are for reducing mammogram exams and self-exams, then how can any women make informed decisions about exceeding the new minimum guidelines if they have no clue of their own breast density, an important risk factor?

Sorry, I'm done ranting. It just is maddening that there is a completely preventable problem that isn't being discussed or dealt with and the new guidelines are only going to make things worse.

[rant = off]
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This happened to Colleen:

Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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Old 11-17-2009, 11:57 AM   #6
StephN
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Re: Dense breasts linked to return of breast cancer

Lee -
I have posted this before. I would get a letter from my clinic after having a mammogram. It would tell me the test was "normal", but go on to mention that I have "dense breasts and in women with dense breasts some 10% of cancers are missed with mammogram."

The letter ended by suggesting I do SELF CHECKS!

I mentioned this letter at my annual exam to my male GP, who encouraged me to perform self checks, which I did. No embarassment there.

Inflammatory breast cancer is also not detected by mammogram.

I like Laurel's mention of Magnified Views.
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Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 11-17-2009, 01:24 PM   #7
Mary Jo
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Re: Dense breasts linked to return of breast cancer

Hahahahahahahaha @ Lee's "examing breast density between the ages of 17 - 25"

Just for the record...I, too, had dense breasts.

Mary Jo
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Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

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Old 11-17-2009, 01:34 PM   #8
v-ness
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Re: Dense breasts linked to return of breast cancer

hi lee - dense breasts are very apparent right on the mammogram itself. they appear as very white and since tumors are also very white, they can evade discovery easier in dense tissue. fatty breasts, on the other hand, are easier to see through. your breasts (well, not yours, ours ) are supposed to go from dense like a 20-something's to fatty like a 40-something's. some of us managed to maintain the nubile denseness. lotta good it did us!

anyway, i seriously doubt political correctness plays any part in mentioning dense vs. fatty breasts. i've actually never even had a man do my mammogram, never seen a male mammo tech. the techs i've had never ever fail to mention the dense tissue and the male radiologist i sat with when i found the tumor in my chest had no qualms about telling me i had dense breasts.... and i live in the PC capital of the world.

i watched Family Guy last night and peter sued his doctor for sexually assaulting him because the doc did a prostate exam. i'm pretty sure no one in the real world would get anywhere with a 'dense breast' sexual harassment suit. actually, after i found my tumor i joked to the surgeon that i'd been felt up more in that month than i had during my whole high school career.
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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Old 11-17-2009, 02:57 PM   #9
Colleens_Husband
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Re: Dense breasts linked to return of breast cancer

Mary Jo:

I did it for science. I'm kinda like Albert Schweitzer in that regard.

Lee
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This happened to Colleen:

Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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Old 11-17-2009, 03:29 PM   #10
Faith in Him
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Re: Dense breasts linked to return of breast cancer

I had very dense breast also but I needed a doctor to tell me that. I had no idea.
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 11-17-2009, 08:40 PM   #11
ElaineM
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Wink Re: Dense breasts linked to return of breast cancer

A large amount of inflammatory breast cancer can show up on a mammogram. The outside of the breast glows on a mammogram when there is a large amount of inflammatory breast cancer present. I am not sure about a very small amount.
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ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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