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11-13-2009, 02:03 AM
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#1
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Neuropathy-information please
Hi all
Since completing taxotere I have had numbness in my toes on both feet but thankfully no pain. It is worse in my big toes but I am aware of it in the others. My onc says this is a side effect and may or may not improve.
I would be grateful to hear any information as whether it will improve and if so approximately how long it will take?
Many thanks
Ellie
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11-13-2009, 05:07 AM
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#2
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Senior Member
Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
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Re: Neuropathy-information please
Hey Ellie, I had neuropathy and we changed to a different taxo after fourth treatment. Mine did go away after months. I only had it in my feet also. Hugs, Alice
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!
1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."
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11-13-2009, 09:00 AM
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#3
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Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
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Re: Neuropathy-information please
The supplement L-Glutamine is good for that.
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
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11-13-2009, 05:03 PM
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#4
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Re: Neuropathy-information please
My onc recommended I try Glutamine concoction during chemo. I did have a fair amout of neuropathy in my feet. Not sure if the glutamine helped or not but the symptoms have gone away gradually over time anyhow.
Keep the faith.
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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11-13-2009, 06:27 PM
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#5
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Senior Member
Join Date: Feb 2006
Posts: 437
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Re: Neuropathy-information please
B Complex helped me tremendously. I was doubtful when my onc rec it.I still take It!.
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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11-13-2009, 07:49 PM
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#6
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Neuropathy-information please
Ellie,
I had neuropathy in my feet, and to a lesser degree , in my fingers. After about 9 months it seemed to abate. I still have stiffness in my feet and hands, but that seems to be different from the neuropathy, and associated with the A.I. I am taking. Hang in there, hopefully yours will abate over time, too.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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11-13-2009, 08:53 PM
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#7
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: Neuropathy-information please
Ellie, The Taxotere did a number on both of my big toes. Both my big toe nails turned black and eventually fell off in time. Same thing for my two thumb nails. I also had some neuropathy in both feet for quite a while. Numbness in the bottoms of all my toes and feet. But slowly over time disappeared & got back to normal. It just takes time...another wonderful side of Taxotere...but this too should pass in the near future. Hang in there.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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11-14-2009, 02:32 PM
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#8
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Neuropathy-information please
Ellie, I had it in my hands rather than my feet but it did go away itself without meds some months after chemo.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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11-14-2009, 06:53 PM
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#9
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Senior Member
Join Date: Oct 2005
Location: Bay City, MI
Posts: 73
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Re: Neuropathy-information please
I've been having terrible foot pain and thumb pain for about 6 months now. I switched from arimidex to aromasin hoping that would help, but it didn't change. I've been doing glucosimine too and I am an avid walker, and I've been miserable. It feels like my feet are on fire and they are sensitive to touch. I go in a couple of weeks to have a test to see if it is neuropathy. I don't know if it is neuropathy what they can do about it, but I guess I'll find out soon.
__________________
Sue
IDC, Stage 1, Grade 3
Oncotype Dx Score 40
Her2+++ E+P+
Lumpectomy 5/05
Re-excision 6/05
4AC
33 rounds of radiation
1 year Herceptin (had to quit after 8 months, due to low muga scores)
Faslodex until 11-07
Hysterectomy with ovaries 11-07
Arimidex 12-07 switched to Aromasin 10-09
Quit Aromasin 11-09 due to joint pain
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11-15-2009, 11:46 AM
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#10
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Re: Neuropathy-information please
Hi Ellie,
I had foot and toe neropathy once I started Taxol. At the end of my Taxol, it very, very slowly went away. I did not take any drugs for it. One time during Taxol, my legs really hurt and I could not walk without pain. I tolerated the cytoxin and adrymiacin much better than the 4 rounds of Taxol. 3 years after chemo, I am fine.
Catherine
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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11-15-2009, 06:51 PM
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#11
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
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Re: Neuropathy-information please
Hi Ellie ~
I had Taxol like Catherine and suffered from numbness in hands, toes and feet. I didn't want to complain to my Onc. because I thought he would cut my dosage...which in hindsight is not the smartest thing to do ;-). However, I did feel much better about 6 months after I was finished with Taxol. I was very heavy into juicing and getting my vitamins through foods. I have heard that Glutamine helps a lot of people. I did take pain pills whenever it hurt to walk (usually when the weather was really cold). Now I don't notice any problems at all.
Hugs ~ Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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