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Old 11-14-2009, 03:44 PM   #1
tricia keegan
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Re: hip problems evaluated

Alice, cant help with advice but sorry you're having these issue's with pain. My FIL also had a hip replacement recently and is doing well
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 11-15-2009, 01:04 AM   #2
Chelee
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Location: Southern, CA
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Re: hip problems evaluated

Alice, I see you had a PET/CT last yr & you have a question mark on hips/pelvis? Did it show some activity in the hip & pelvis area? I only ask because my baseline PET/CT showed slight activity and it was recommended they follow-up with MRI to rule out metastasis. (However they never did because they said it lit up due to my scoliosis.) Now looking back I had mets to hips from day one. I wish I would of forced them back then to MRI both hips and I would not be in this situation right now.

So I am glad to see you having your hips checked out now...I would push for MRI of hips & pelvis just to be on the safe side...and for peace of mind. Especially if your having pain in your hips. I had pain in both mine before being dx with bc...but neuro doc told me it was bursitis. But now I wonder it if was mets all this time verses bursitis? I know you mentioned having scoliosis also...so it just might be a degenerative problem after all these yrs. Opps...I just re-read your other post & I see your getting your MRI and PET reports off line to take to doctors. So you already had a MRI. Is that MRI of hips recent? I'm glad to see your looking into this and staying on top of it...very good idea. What kind of work-up does these doctors have planned for you besides just a x-ray? Have they told you the plan yet? I hope they can get to the bottom of your pain and correct it.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 11-15-2009, 06:13 AM   #3
Sheila
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Re: hip problems evaluated

Alice
Are you on anything other than Zometa and Herceptin? Can they do the hip surgery if you are on Zometa, or do you need to be off it awhile...maybe thats another drug I am thinking of....
Have they already scheduled your hip surgery? I see in your bio you said the 18th, and I am thinking thats next week!
Please keep us informed on the plans......sending a big hug and lots of prayers.
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Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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