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Re: Recommendation from my 2nd opinion...
Chelee,
I can relate to the commute for a trial. I'd say 50 miles is for wimps because MY commute is 75 miles one way...but you get extra credit for it being LA traffic.
It is a pain, but you can make the most of it. I have been able to work mine so I get the FIRST appointment of the day - which means less likelihood of them being behind schedule. Of course that means I have to leave before dawn but the traffic is better then. I've even learned how to use public transportation which is not much better here than in LA.
Plus, now I know all about SF...oh, and I'm getting the opportunity to get a fabulous therapy that is not yet available.
Not trying to make light of it, believe me the commute did wear on me. But when I balanced the potential benefit of being in the trial against the PITA of getting there, it was the right choice for me.
Also, just a comment on your doctor - it may be she didn't mention the trial because she could not offer it to you as it is full. But still...
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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