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Old 10-06-2009, 08:40 AM   #1
Rich66
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Re: What Does the Medical Profession Mean by "Standard of Care?"

Interesting discussion. Me thinks the concept gets stretched at times in cancer world..where "standard of care" may not offer much care at all.
On the other hand, it was helpful me to hear the phrase when mom was getting a surgery consult and the surgeon was considering skipping a node biopsy. This didn't match with what I had read. I asked someone at ACS and they said it wasn't standard of care. That gave me the courage to confront the surgeon.
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Old 10-06-2009, 09:50 AM   #2
Becky
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Re: What Does the Medical Profession Mean by "Standard of Care?"

To me it means the accepted protocol. For example, when I was diagnosed in 2004 standard of care was not "segmented" to Her2 neg and Her2+ (since Herceptin could not be used in the adjuvant setting). Therefore, standard of care was as such:

No nodes, less than 1cm tumor - masectomy or lumpectomy with rads

larger than 1c but less than 2 with no nodes - 4 AC (plus rads if lumpectomy)

as soon as a positive node or greater than 2cm tumor - 4AC and 4 Taxol.

Herceptin changed protocol since the trials also included TCH so TCH or AC followed by TH became standard of care for Her2+.

My cousin just finished treatment - her2 neg and a medium oncotype (lobular so she had double masectomy. Her affected side had 3 tumors (all 1.2 cm or smaller - 2 were the same ER+PRneg and another was ER+PR+). No nodes - got 4 taxotere+cytoxan which is becoming standard of care too (as oncs are getting away from adriamycin especially for Her2 neg women).

It will get more and more complicated as more tumor markers are discovered too.

Standard of care is really " what is done now". But now means alot of choices too.
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Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 10-06-2009, 11:27 AM   #3
Joe
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Re: What Does the Medical Profession Mean by "Standard of Care?"

Standards of Care used by most oncologsts are reccomended by The NCCN - National Comprehensive Cancer Network. www.nccn.org

Here is their all inclusive guide:

NCCN Clinical Care Guide

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Old 10-06-2009, 11:39 AM   #4
Hopeful
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Re: What Does the Medical Profession Mean by "Standard of Care?"

I think the correspondence is trying to define what standards a treatment has to meet in order to be called, "standard of care," and has concluded that the term has a definition in a court of law, but no real definition in medicine: "the term standard of care should be used with caution. Currently, it can be self-awarded either by a group of like-minded individuals or by a specialist society or organization and is a term which can be abused with the intention of providing impact and authenticity to a point of view. At worst it could be considered to be self-promoting. This possiblity is acknowledged by the National Institutes of Health Consensus Development Program, which states the following 'Most other scientific and medical conferences rely on content experts to make reccomendations; however, this raises the possibility of potential conflicts of interest given the expert's financial and career ties to the topic.'"

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Last edited by Hopeful; 10-06-2009 at 11:42 AM.. Reason: typo
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