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Old 09-22-2009, 12:51 PM   #1
Margerie
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Re: Cancer is back...I just knew it.

I am in shock Chelee, friggin' crap!!!

Hoping you can find a compassionate and skilled oncologist to help you kick this cancer to the curb.
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Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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Old 09-22-2009, 12:56 PM   #2
Hopeful
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Re: Cancer is back...I just knew it.

Chelee,

I am so sorry and angry for you. Please know that you are in my thoughts, and I wish you best of luck in finding a caring onc and the tx you deserve.

Hopeful
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Old 09-22-2009, 01:17 PM   #3
michka
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Location: Paris, France
Posts: 858
Post Re: Cancer is back...I just knew it.

Dear Chelee, I understand how upset you must be. You are right to look for 2 or 3 opinions. I changed oncs twice before finding one I trust and more important, one I could discuss my treatment with. I also understand how bad you feel about your husband's reaction. Maybe it is a way to protect himself but you should tell him how you felt about it. Nicely, but clearly. You have enough to carry. I hope you will quickly find another onc who will give you a good treatment. I am sure there are plenty of options to try the first one being to go back to H;
I send you love and courage.
Michka
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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Old 09-22-2009, 01:38 PM   #4
Karen Wheel
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Re: Cancer is back...I just knew it.

You need to stop questioning yourself. And I agree in the second opinion.!!!!

Also, I think, if I were you I would explore doing some holistic avenues along with the course of "whatever" the doctors ask you to do.... I am doing a combined approach of chemo/herception and then diet and a huge change in how my body can handle and heal itself. The catch is I have changed the pH in my body - and cancer can not survive, (grow or even stay active) in a body with a neutral pH. So.... the approach is change the pH in our bodies and live.... heal ourselves. It really is that easy.

If you want another approach - please email me for more info (I have a TON) at my personal email.
wheelistic@yahoo.com

I am thinking really good thoughts for you and believe that you will get some answers from your doc and also a 2nd opionion --- that will be a good start!

Hope this helps --- Karen
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Karen Wheelhouse Age: 46
Facebook id: Karen Wheel
2-09 – Age 44 -Biopsy-Cancer
3-09 – Right Quadrantectomy. Clear margins.
3 lymph nodes taken - all clear
Tumor results: Stage 1, 1.5 cm, Her2 +++
Est positive 80% - Prog 10% - Ki67 postive 30%
4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH!
4-09 Started Herceptin & Chemo (9 weeks of Navelbine *)
* FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer!
8-09 - 30 RADS
9-09 - Said NO to hormone therapy
4-10 Finished Herceptin!!!!


7-10 PET Scan & other exams .... All clear! YIPPEE!!!!
11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED!

2-25-2011 --- 2 years from surgery and NED!!!!!!
7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]
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