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09-19-2009, 08:25 PM
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#1
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Update on Maryann/Newcomers board...
Hi all, I thought you would all like to know a friend of Maryann's posted a message to update us all. She isn't familar with this board yet so I thought I'd post on this forum to make sure everyone got to see it. I hope nobody minds.
Chelee
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LizDT
Member
Join Date: Nov 2007
Location: In a fixer upper on the east coast
Posts: 8
Hi, I am Long Island's Maryan D's friend
Hello all,
Maryann D from LI asked me to update all of you about her new fight(s) against the beast. As you may remember Maryann was diagnosed with IBC in 2000, went into remission, had liver and lung mets two years later, then developed AML from all the chemo. She had a stem cell transplant, has had graft vs host of liver, iron overload and now needs new hip joints because the steriods taken for all other problems have caused her hips to fall apart causing severe pain and an inablilty to walk. But our Maryann fights on.
She has been in the hospital on and off since early June. Latest MRI shows a "very small spot" on her brain. She will have a repeat MRI in just about three weeks. If the spot is still there she will have static rads (one zap). She wants all of you to know she is ready for this fight. She has asked for prayers and positive thoughts.
I am not very good at navigating this site, but if you want to get in touch with me, I will e mail you my address, so you can get messages to our dear Maryann, Forgot to say, she does not have a 'puter in hospital.
Oh, newbies, I am a ten year survivor of the beast, 19/20 postive nodes, given maybe 18 months to live. I have seen my daughter graduate hs and both kids graduate from college. Don't believe the doctors, believe in the Great Spirits and yourself...... Life is good,
Liz DT, fom Long Island
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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09-19-2009, 09:06 PM
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#2
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Member
Join Date: Nov 2007
Location: In a fixer upper on the east coast
Posts: 11
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Re: Update on Maryann/Newcomers board...
Dear Chelee,
Thank you for re posting my post to the main board. I see why Maryann loves you all,
With many thanks, much love and prayers for a cure NOW,
Liz DT
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09-20-2009, 09:14 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Re: Update on Maryann/Newcomers board...
Thank you Chelee!! XO Suzan
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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09-20-2009, 11:32 AM
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#4
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Re: Update on Maryann/Newcomers board...
As we all know, sometimes MRIs show junk. I hope this spot is "junk in the brain." I inviteMaryann to go Latin line dancing with me after the hip replacement.
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MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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09-20-2009, 03:20 PM
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#5
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Update on Maryann/Newcomers board...
Welcome aboard. Thanks for updating us on Maryann. Give her a big hug from me and the whole gang from here.
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09-20-2009, 03:46 PM
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#6
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: Update on Maryann/Newcomers board...
Chelee, very kind of you to post information on Maryann.
Liz, with the fighting attitude you have of course you would be a close friend of Maryann!
Please tell Maryann my healing prayers are always with her and hold onto the green lady!
Hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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09-20-2009, 03:48 PM
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#7
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Senior Member
Join Date: Aug 2006
Location: Poland Ohio just a little south of Youngstown.
Posts: 473
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Re: Update on Maryann/Newcomers board...
Add another big hug from me, I've missed her posts terribly. when I was first diagnosed and read her story, it gave me so much hope. What a fighter, love her a lot!
Hugs
Susan
__________________
Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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