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Old 09-17-2009, 03:37 PM   #7
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Re: Benign reasons for TM'ers being elevated?

I do know I've had fibroids that have shown on my scans since my 1st baseline PET/CT. I've also had a big seroma that was drained twice but has never absorbed. Its large...last "US" was 6.9 x 6.8 x 2cm. It does feel like it's changed...feels hard as a rock now. It was never this hard...causes discomfort big time.

I've always had these things since this entire nightmare started so I would have to wonder why it would elevate my TM'ers slowly over the last year & 1/2? And now instead of a slowly elevated rise...seems to be climbing faster now. I've been fortunate that I've experienced no lymphdema...well that I'm aware of?

Shelia my markers "seemed" to be accurate. They stayed in a low range throughout chemo & to the end of my Herceptin. Your question got me to look hard at my TM'er readings & now thanks to you I see my TM'ers started slowly rising not long after I finished Herceptin. Didn't notice that until now. I see my markers started creeping up exactly 4 months after I no longer received Herceptin. So now that makes me wonder if Herceptin was keeping "it" away...or if my markers are going to their new normal? I don't know what to think?

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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