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Re: Stage I, how do is NED/progression normally monitored?
I am a Stage I gal and I am only scanned if I have an issue pop up or I insist on an annual scan and or MRI. I know that there is a significant amount of radiation with the scans, so reducing exposure is wise, however I wish I had the assurance of a scan to alleviate my anxiety. Presently, I have an aching Lt hip. Naturally, I am concerned it is mets. Interestingly since discontinuing the Tamoxifen my hip is troubling me less. I will not even have any blood work except the standard CBC. I have renal studies and liver studies secondary to the Clondronate trial I am in otherwise I would not have those monitored.
Yes, at times I do feel as though I am flying blind!
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Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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