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Old 07-17-2009, 10:13 PM   #6
Henny
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Join Date: May 2008
Location: Oregon
Posts: 110
Donna,
I'll look for the sodium fluoride PET bone scan articles on Monday when I get to work-I know they're in a folder somewhere. I do know the scans are being done in Seattle and I think maybe Stanford is doing a study looking at combining the sugar and sodium PET agents but don't know the preliminary results.

I asked my onc for zometa when I read about it last year. He agreed that it was a good thing to try as a prevention but would be off label so I may have to pay for it. Fortunately my insurance covered it.

I also asked him about serum tumor levels when I was first diagnosed and he thought they were too unreliable so I didn't push it. Maybe it's time to ask about it again.

In the meantime I noticed a couple new lumps near my scar and had an ultrasound today which showed 2 spots but wasn't specific. Could be scar or a nasty thing. Seems like a biopsy is in my near future. I'm going to put this in a box and try not to think of it this weekend when I can't do anything about it. Ah for the good old days when life was a little easier and I was a little naiver
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Henny
Dx 3/07 IDC and DCIS Her2+ ER- PR-
Stage IIb 1/15 nodes
A/C, Taxol, Herceptin
Bilateral mastectomies with recon
Zometa 2/yr for 3 yrs- finished 8/2011
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