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Old 07-05-2009, 07:08 PM   #1
Darlene Denise
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Join Date: Aug 2008
Location: Virginia Beach, Virginia
Posts: 145
Tough Call

I wrestled with this same decision and learned in the process, there is no clear cut medical data that supports treatment protocol.

My onc felt it important to remove the primary tumor after initial chemo results. I wanted the bitch out of there, for sure. He had no preference as to type of surgery. My breast surgeon explained both lumpectomy and mastectomy as options. Had I been early stage, I would have gone mastectomy route. Since I was already Sage IV, I decided to attempt the lumpectomy since my tumor did shrink dramatically from chemo and the surgery was being used for loco-regional control, not curative. I felt if clear margins were obtained, the auxila was removed and I had radiation along with the fact I would be a lifetime recipient of Herceptin that odds of another occurrence was small and that I could avoid a major surgery event and the reconstruction issues. If I have recurrence ( I still get mammograms every 6 months and onc does exam every 3 weeks) I can then have a mastectomy. We got clear margins, the lymph nodes were all negative (from chemo) and I completed radiation. The radiation onc wasn't initially receptive to giving radiation since I was stage IV, but after a consult with my surgeon he agreed it could offer potential benefit since I could have some longevity with Herceptin.

It's been a year since the surgery and I am comfortable with my decision. It was best for me. That should be your ultimate decision test, what makes sense to you and what are you comfortable with. There is no guarantee that either will eliminate future occurrences. I just prefer to address things only if or when they present, just like we do with our other sites of mets and with the least stress on my body.

I wish you peace of mind and a successful surgery.

Darlene
__________________
12/14/07 IDC ER- PR- HER2+++ LIVER METS AT DX CONFIRMED BY LIVER BIOPSY
01/14/08 2 AC TREATMENTS-NOT WORKING
02/04/08 13 TAXOL, CARBO, HERCEPTIN TREATMENT-EXCELLENT RESULTS!
05/12/08 HERCEPTIN EVERY 3 WKS
08/22/08 BRAIN METS! 8 <5MM
09/17/08 CYBERKNIFED BRAIN METS
10/20/08 BRAIN METS SHRINKING
12/29/08 BRAIN SCAN SHOWS 1 LESION GONE, 7 SHRINKING & STABLE, 1MM ? SPOT
01/16/09 LIVER REOCUR-XELODA/HERCEPTIN
03/02/09 BRAIN SCAN 2 LESIONS GONE, 5 STABLE, 1MM ? SPOT STILL A ?
3/27/09 REGRESSION OF 2 LIVER LESIONS XELODA & HERCEPTIN
06/08/09 STUPID BRAIN HAS 3 LESIONS
06/29/09 CYBERKNIFE
07/01/09 LIVER REGRESSION NO NEW METS
07/07/09 TYKERB XELODA HERCEPTIN
11/11/09 GEMZAR/HERCEPTIN FOR LIVER PROGRESSION
03/22/10 BRAIN MRI GOOD-3 SMALL NECROSIS LEFT FROM ORIG 11!!
03/26/10 CHANGE TO NAVELBINE/HERCEPTIN 3 LIVER LESIONS PROGRESSING IN SIZE
05/21/10 NAVELBINE/HERCEPTIN WORKING!
07/19/10 GOOD BRAIN MRI
08/20/10 LIVER PROGRESSION
09/08/10 TDM1 - NASHVILLE TN
01/10/11 LIVER RESPONDING TO TDM1
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