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Old 06-22-2009, 08:32 AM   #1
duga35
Senior Member
 
Join Date: Jan 2008
Posts: 154
Alicem, I think what you are doing is great. If you need anymore input I would be glad to help as well.

You asked if most men are diagnosed at a late stage? I was 39 when I was diagnosed at stage 1. I was having a discharge out my nipple. I pretty much knew deep down that I had cancer, but I kept trying to ignore it, hoping it would just go away. I didn't have time for cancer. Too busy working, trying to raise a family, etc etc. I can imagine many men would feel the same way. Dunno.

But, thankfully my wife finally made me see a doc. Had a mammo and ultrasound done on one day, saw a surgeon the next evening, and I was in surgery the next morning.
__________________
Diagnosis and Treatment: DX 12/07/07
Male Diagnosed with DCIS at age 39
Mastectomy on right breast
Tumor Stage pt1b NO MO
DCIS Tumor size 1.5 x 1.x .6cm
Infiltration tumor size .25X.17 cm
Bloom-Richardson Grade 3(score 8)
Nuclear Grade 3 with comedo necrosis
Estrogen+/Progestrone+/HER-2/Neu +++
FISH ratio 4.31
Lymph node removal scheduled 1/07/08
17 nodes tested and all negative 1/08/08
Started Tamoxifin 1/29/08
Oncotype DX score 52 (off the charts, according to my onc!!!)
Starting TCH 3/14/08
BRCA I Positive BRCA II Negative
Finished TC 6/27/08 continue Herceptin
8/1/08 Herceptin stopped due to low Muga score
Mastectomy on left breast 11/10/08
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Old 06-22-2009, 10:45 AM   #2
alicem
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Join Date: Jan 2009
Location: Colorado Springs, CO
Posts: 430
Doug,

Thanks so much. I KNEW there was someone else here dealing with male bc, but my chemo brain just couldn't think of it.

My talk at our church was in honor of Father's Day, but I don't want the info to end there. I am trying to figure out where to go from here. Like I mentioned above, I am participating in a biking fundraiser for 10 local non-profit organizations here in central Texas. I have been asked by the executive director to tell my story as time for the ride gets closer (it is in October). I think this is a great way to get the word out that this is not just a woman's disease.

What I think really helps is having personal stories to share, kind of like a testimonial of what you all have gone through, and what you would like others to know. If you have the time to do that within the next weeks or couple of months, and do not have a problem sharing your story, that would be a big help.

Thanks,
Alice
__________________
9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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Old 06-22-2009, 07:20 PM   #3
duga35
Senior Member
 
Join Date: Jan 2008
Posts: 154
Sure, I can do that. It may take me a little bit of time to gather all of my thoughts though. I have to warn you that I do tend to ramble a bit I will prolly send it your personal email, because I guess I'm a little apprehensive of talking about certain things!
__________________
Diagnosis and Treatment: DX 12/07/07
Male Diagnosed with DCIS at age 39
Mastectomy on right breast
Tumor Stage pt1b NO MO
DCIS Tumor size 1.5 x 1.x .6cm
Infiltration tumor size .25X.17 cm
Bloom-Richardson Grade 3(score 8)
Nuclear Grade 3 with comedo necrosis
Estrogen+/Progestrone+/HER-2/Neu +++
FISH ratio 4.31
Lymph node removal scheduled 1/07/08
17 nodes tested and all negative 1/08/08
Started Tamoxifin 1/29/08
Oncotype DX score 52 (off the charts, according to my onc!!!)
Starting TCH 3/14/08
BRCA I Positive BRCA II Negative
Finished TC 6/27/08 continue Herceptin
8/1/08 Herceptin stopped due to low Muga score
Mastectomy on left breast 11/10/08
duga35 is offline   Reply With Quote
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