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Old 04-28-2009, 11:55 PM   #1
harrie
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Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
I want to add one thing. Remember i was telling you that I develop an unusual case of widespread raised red dots on my legs? I mean it was all over the sides of my calfs, just like that...boom...and then it kind infiltrated later my thighs and a bit on my arms and hand? Well NOTE THIS: all these dots initially appeared in the late afternoon on the SAME DAY that I had these labs taken (which was in the morning). I wonder of this inflammatory dermatitis could have made a slight elevation on my markers. (byw, found out the dots was a reaction to my bubble baths)
Thank you everyone for your input. I really appreciate it.

PS.....Welcome donalddonald!! I would like to send your wife some warm peaceful good thoughts... Keep on posting, ok?!
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara

Last edited by harrie; 04-29-2009 at 12:00 AM..
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Old 04-29-2009, 12:41 AM   #2
Believe51
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Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
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You know, Harrie, I was thinking about this a little awhile ago but I was consumed trying to clean out my pm box. How is that rash?

I just wanted to say that when there is a change for so many consecutive results a doctor will proceed with testing further. These tm tests are not cheap but are a great way to measure what is going on in the body. Some doctors truely do not put that much stock into them and there may be a cost issue involved with others reasonings. It is meaningful for us to realize the great importance of these tests, one would know if they are tm sensitive by the other weights and measures used in conjuction vs the results. These tm tests have allowed Ed to act faster than waiting for symptoms (ex: his brain) and there is no time to waste....he was diagnosed at stage IV. His tumor markers rose with every cancer rise even before a MRI spotted the brain mets or the bone scan noticed the new mets. I am very religious about these blood tests because they have allowed us to save some of the time we are fighting for. Ed is very very tumor marker sensitive and I am thankful for learning this. I firmly believe he is still alive today because of our proactiveness.

Other factors do play with that number but not that great of a difference. IMO, I would say 'slight'. We should all find out if we are tm sensitive and fight for these blood tests if we are. We fight for so many things, we find out so much information.....why would we not want to know if we are TMS?? We should all be as proactive as possible.

I am not trying to worry anyone, these are all just my experiences. I would never let Ed go more that 4 weeks without a test. He is Stage IV, Her2+++, Inflammatory and Male breast cancer, so there is nothing he could add to his disease that would make it more aggressive than that!

If anyone is uncomfortable with or without the tm tests please approach your doctor and discuss this matter. Again Harrie, you are looking great and I did not mean to ramble on and on. I just know that these tm have saved my husbands valuable time and this thread could save someone else's. Your diagnosis is not solely based on this bloodwork.>>Believe51

PS: Even when Ed knows he is having a reoccurence and the tm have risen into the hundreds, the OncoMan will still proceed with caution and gather much proof before acting, only with extreme speed and grace.
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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