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Old 04-23-2009, 06:34 PM   #1
Laurel
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Location: Hershey, PA. Live The Sweet Life!
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Really? Good to know. I didn't think it was routine with TCH. I never had any problems with my insurance covering it either. How is neutropenia managed in the U.K., I wonder?
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Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 04-23-2009, 06:50 PM   #2
AbbyDawg
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All are given Neulasta routinely as part of my oncol. protocol. She felt given preventatively was smart and kind. I liked her perspective toward the value of the drug ... not the cost.

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Old 04-24-2009, 02:29 AM   #3
Ellie F
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In the UK to my knowledge it is given once neutropenia has developed and you are admitted to hospital. They tend to delay your chemo by a week if your blood level is low. This has happened to quite a number of other breast cancer patients I have spoken to.I have not found anyone who has had it as a preventative measure. This is such a shame as it just adds to the anxiety of having chemo.One lady I met at the breast clinic had not ventured out of her house and wouldn't have visitors as she was so frightened of getting an infection and becoming ill! Hugs Ellie
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Old 04-24-2009, 06:33 AM   #4
alicem
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Yes, this really is a shame. Just one more reason for all of us to monitor what happens to the health care system in the U.S.
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9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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