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Old 03-01-2009, 08:33 AM   #1
Midwest Alice
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Haven't been posting lately just reading. Is the Vitamin D you all are talking about Vitamin D3? Wanted to make sure I am taking the right one. D3 Cholecalciferol is what mine is. After reading this, I doubled to 1600 IU. I may add more. I wonder if my onc checks my vitamin D levels when he does my routine blood test?

Thanks my warrior friends, may you be aware of Gods blessings shining on you today!
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04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!

1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."

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Old 03-01-2009, 11:15 AM   #2
Lida
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blood test for vitamin d question

Hi Vickie and her2 friends,
My vit d. level was at 24, though I was taking over 1000 of d3 supplements per day. My prim. doc recommended taking weekly 50,000 iu d2 for 8 wks and then rechecking. I am on a pretty tough regimen now of Herceptin/Taxatere/Carboplatin and am concerned about additional side effects from the large dose of vitd. An onc I had in the past said this combo (with the vid d) could increase my side effects such as nausea. My nutritional onc. dr. suggested taking 4000 iu per day of d-3 instead. Vickie and any of you on chemo and high dose vit d, do you find increased side effects from the vit d? Any other friends had any side effects from high dose vit d? Thank you so much. Lida
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Old 03-01-2009, 11:28 AM   #3
Shadowpilot
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Hi all,

I take 10,000 mg/day and my levels were at 66 last check. My naturopath thinks that is a low level of normal. Living in the NW, I will continue on this dose until the level gets a little higher and the sun returns for its brief summer. I can't find much on side affects of too much Vit.D. Anyone else?

Sue
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Old 03-01-2009, 03:56 PM   #4
Mary Jo
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Hi Alice,

Yes, I am talking about D3. That is what I take.

Hugs to you,

Mary Jo
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Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

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Old 03-01-2009, 05:22 PM   #5
Linda
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Vit D

My onc has been testing Vit D levels for some time. She believes that women who've had bc should be on the high end of normal, and most of us are low. I took supplements for a while and ended up having to take 7000 units a day to get my levels where she wanted them (last level was 66.) We continue to test because she believes that too high a level can be damaging. I think the top level would be in the 80's or so (I'm sure someone else will know.)
I'm happy to keep taking the supplements. They're (d3) easy to take, cheap and I have no adverse effects. I actually think I'm not getting colds and flus when everybody around me is sick.
Linda
(dx 05, stage 3a)
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Old 03-02-2009, 03:42 PM   #6
StephN
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Wink

Got my result today from last weeks blood test for Vit. D level. This is AFTER the 8 week megadose of 1 50,000iu cap per week.

Number is up to 50 - wow, the BIG 5-0.

Up from 30 pre-megadose.

So now Shadowpilot has me wondering if I need to really do more than the 4,000 iu/day I was planning???
(Since we share the same climate and can't always drop whatever we are doing and run outside when the sun does decide to shine!)

I was figuring on trying to hold around the level of 50.

Will see my med onc in a couple of weeks so will decide with her, since my general doc is only recommending the standard 1,500 iu supplement per day.
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Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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