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Old 02-21-2009, 09:04 PM   #1
Laurel
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Location: Hershey, PA. Live The Sweet Life!
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Good luck on Monday, Westcoastgirl! We are all pulling for you! Chemo is just yukky, but you will be done before you know it. I will pray all goes well for you. Let us know how it goes when you are feeling improved.
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Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 02-21-2009, 09:35 PM   #2
Jackie07
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Try finish your meal at least 2 hours before the treatment. They may give you some ice to chew on during certain chemo infusion. Be sure to let the technician know your reaction to the chemo. Get a book to read or a puzzle to do. Our treatment room also has small TV mounted individually.

I usually fell asleep after 1 1/2 hour infusion. Also, your first infusion (loading dose) will be much longer than the following ones. (1 1/2 vs. 1/2 hour) I think the total treatment takes about 2 hours thereafter. Because I had had certain reactions (rash? &?), I had to take about 4-6 pills (including benadryl) orally just before getting the intravenous treatment. (They also do a 'flush' of the chemo pouch before infusing the real chemo liquid.

Just be sure to communicate to your nurses and treatment room staff.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
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Tamoxifen B. scan
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hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

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Old 02-22-2009, 06:34 AM   #3
Becky
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Location: Stockton, NJ
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Hi

Although I did not have my breasts removed, I am seriously contemplating it and have researched reconstruction and gone to seminars.

I am not interested in implants but from my research, if you get radiation and the rads are done before the reconstruction then nipples cannot be made from the skin that was radiated and they use skin from the inside of your thigh. Also, radiated skin may not stretch as easily as skin that is not radiated. However, if done before rads, you could get some capsulation (odds are well in your favor that this would not happen). Are you getting the new "gummy bear" silicone implants. Ask your PS about them because I heard in a recent seminar that they are superior and they should be getting FDA approval as we speak.

You should also ask your PS about the pros and cons of reconstruction before or after rads as they would have the best perspective of this.
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Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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