Navelbine

shondagaylord · 01-04-2009, 09:08 AM

Thank you for all of the positive information and Best wishes to all of you.

Barbara H. · 01-04-2009, 05:23 PM

Navelbine is well tolerated for most people. I had to receive procrit shots and had mouth sores after my first infusion. I was never really sick, but a little tired the next day. I did not care for this drug because Herceptin alone was easier, and Navelbine did give me mild neuropathy. The T-DM1 trial is much easier for me. Nevertheless, as chemo drugs go, this is an easy one.
Best regards,
Barbara H.

01-04-2009, 05:28 PM

What is the T-Dm1 trial?

Barbara H. · 01-04-2009, 08:26 PM

It is Herceptin with a small attached molecule that is brought to the cancer site by Herceptin. There are many posts about it on this forum and in the trial section. It has been a great trial for me and has put me in remission. It has caused a mild inflammation in my lungs as a side effect and I am currently using streoids to deal with that issue.
Best wishes,
Barbara H.

StephN · 01-04-2009, 10:18 PM

H -
Welcome to the Navelbine Club. A lot of us here have had to use it at some point, usually for mets.
I took it with Taxol and Herceptin for 7 months weekly. Am pretty sure it was the Taxol that was the hardest on me of that combo. But they WORKED! I have been in remission ever since and that is going on 7 years.

We hit my liver tumors hard with a 3-pronged approach and though I was tired, lost hair, had mouth sores - it was actually no worse as a group than Adriamycin.

I know others who have had good luck with that drug and been able to go back to it after a time and do well again.

Patb · 01-05-2009, 10:41 AM

Hi ShephN

Love you snowflake sweater, I collect them and your
new picture is great.
patb